| Joined: Nov 2013 Posts: 1 Member | OP Member Joined: Nov 2013 Posts: 1 | I was just diagnosed about two months ago with Oral Lichen Planus. When my oral surgeon first looked at the spot I have, it had a lacy pattern to it. Now it is a solid spot and is sore. Also this spot is on the underside of my tongue in the back. I am a former smoker, and have read that the chances of this turning to cancer are higher because of being a smoker. I know stress has a huge part in me having this condition also. As of right now, the spot on the back of my tongue is sore, but not open, just tender to the touch. I have a patch of lichen Planus on the inside of my cheek and inside my bottom lip. My throat also hurts. Just looking for help about the course of action I should take. This is all new to me. I had my wisdom teeth out last month and the dentist didn't feel a biopsy was necessary at the time. Please help. I am worried about this turning into cancer eventually. Trying to keep that from happening.
Dion
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I know you are scared but try not to fret. Worrying wont help your situation at all. Please try your best to think positive and keep busy so you arent stressing yourself out about "what if". I would advise going to an ENT who treats oral cancer patients and ask for your spot to get biopsied. This will determine for sure what is going on and if there is any reason why the sore has changed.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yes - you need to hit up an ENT ASAP the painful spot on your tongue needs to be biopsied. My area was simply chronically inflamed forever,and painful. My tumor was actually under the surface. It took two biopsied and a dx of lichen planus, before I was actually diagnosed. Make sure your ENT is very knowledgeable in oral cancer care. hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2014 Posts: 8 Member | Member Joined: Jan 2014 Posts: 8 | Dion K, do you have an update? I hope all is well. I am new to this site and have had the same diagnosis Lichen planus, along with leukoplakia. It is confusing to say the least and I worry that I went to a very inexperienced Oral surgeon. I have an appointment today for the same guy after two years follow up. 4 years ago I had a biopsy of several different sites. Followed up when I was worried about the pain i felt upon eating. Was told I was too young to have anything serious. Therein, I should have gotten a second opinion. two years later now, I am about to go in again because the lichenplanus and or leukoplakia has come back back a spread significantly and is now more painful than before. Incredibly worried at this juncture, but trying to keep good thoughts. I am a former smoker and I do have high risk HPV. | | | | Joined: Aug 2013 Posts: 6 Member | Member Joined: Aug 2013 Posts: 6 | Hope all works out for you. My wife has something similar, she gets a biopsy next week. I am still fighting cancer from my tongue replacement surgery in June 2013.
3/2008 D/w Stage 4 throat cancer 5/23/2008 Surgery hospital 2 days 6/2008-8/2008 rad. and chemo 3/2013 diag w/ s 4 tongue cancer 6/24/2013 3.8 cm lump repld 70% of tongue j-peg feed tube 6/24/2013-07/22/2013 hosp. 7/22/2013 present hm nurse swallow spec speech thphy 09/03/2013 start rad and chemo 11/08/2013 finished 5 weeks of Radiation 3 chemo treatments and 1 week of Cyber Radiation...mouth and tongue infected and swollen
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