| | Joined: Oct 2013 Posts: 6 Member | OP  Member
Joined: Oct 2013 Posts: 6 | Hello,
everyone who got dx from lump/swollen lymph node in your neck, what was the size of swollen lymph node that was biopsed ?
I'm fighting doctors to do biopsy of swollen lymph nodes (for 6 months, many with size from 5-15 mm,various symptoms related to OC) they all say that they are too small for it.
Best wishes and God bless you all
A.
no dx yet, risk factors for HPV, many swollen lymph nodes form 0.5-1.5 cm. in the neck, ear pain, soar throat, lower jaw pain, lump behind tonssil...
PCP, dentist, hematologist, ENT, 2 rounds antibiotic (no effect), 2x echoscopy, various blood tests...
| | | | | Joined: Nov 2013 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2013 Posts: 34 | Hi Andrew, found a golf ball size lump under my left ear while shaving. Don't remember it being smaller and growing. Just bam there it was. Visit to PCP, ct scan, biopsy of left tonsil. SCC with mets to one node.
discovered a golf ball in my neck St.Paddy's day 2010.
Dx stage 4a left tonsil ca may 2010 at 50
non smoker, moderate beer drinker
HPV-16 pos.
tosillectomy
9 weeks Cisplatin
35 rads
nov.2010 PET NED
2011 2x PET NED
2012 2x PET Ned
3/13 Pet NED
SEptember 2013 Pet uh-OH.questionable and anxious
follow up pet, yup, its back.
mets to sub clavivular and mediasteinum nodes
biopsy positive scc.
trying to figure out next step
my imaginary friends think I am crazy.
| | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Mar 2013 Posts: 421 Likes: 1 | 2.5cm when they did the FNAB. Usually, docs aren't too concerned with nodes under a cm.
57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Two months ago I had a lymph node that was 3x7mm picked up on a PET/CT, SUV 4.3, that was biopsied by FNAB under ultrasound guidance, which came back as metastatic cancer. I guess it depends on the location of the lymoh, and experience of the pathologist, and if using ultasound/sonogram. The patholologist was called In for review of the PET, and said he can do an FNAB. Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I noticed it while shaving but with no pain anywhere I opted to ignore it but by the time I showed it to my wife 30 days later she screamed "OMG that's as big as a golf ball, you have cancer!" Five, as in 5, doctors later she was proved correct.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | If it is 15mm - that's 1.5cm - the node they removed when they did my surgery was 1.4 cm (or 14 mm) it was very palpable. The size of a small bird's egg. It was NOT too small to biopsy. Plus as someone else mentioned there is very much the possibility of doing an ultrasound guided biopsy. I would PUSH - better safe than sorry.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2013 Posts: 6 Member | | OP Member
Joined: Oct 2013 Posts: 6 | Yes i know that it is better to be safe than sorry, but i have to fight system, here in my country all doctors are old fashioned, they have this old thinking that OC is only for older people with long smoking/dirnking history... They do not know about OC HPV breakthrough in modern world  And if you talk to much they think that you are hypohondrical...
Last edited by Andr3w; 11-07-2013 08:23 AM.
no dx yet, risk factors for HPV, many swollen lymph nodes form 0.5-1.5 cm. in the neck, ear pain, soar throat, lower jaw pain, lump behind tonssil...
PCP, dentist, hematologist, ENT, 2 rounds antibiotic (no effect), 2x echoscopy, various blood tests...
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Andr3w, you should send your doctors to this site and tell them to poke around a little.
In my case the lump appeared more or less suddenly and it was about the size of a walnut. When they eventually cut me open to remove it they found a second smaller one malignant that I hadn't even felt. So you should definitely push these guys!
Keep us posted.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Find different doctor's. MANY of us got bounced around so much we were stage IV by the time the dx came. You are your only advocate...PUSH on somewhere else.
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Oct 2013 Posts: 6 Member | | OP Member
Joined: Oct 2013 Posts: 6 | i read so many stories, the things you all got trough, this is wonderful family! Trying to push them all, but things are going very slowly: visit-> wait for your turn-> visit-> wait for your turn again for a week or two... In my opinion majority of diagnosed with OC are in late stage, maybe 70-80 %, this thing is in such obvious place, but so hard to detect...
no dx yet, risk factors for HPV, many swollen lymph nodes form 0.5-1.5 cm. in the neck, ear pain, soar throat, lower jaw pain, lump behind tonssil...
PCP, dentist, hematologist, ENT, 2 rounds antibiotic (no effect), 2x echoscopy, various blood tests...
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