| Joined: Jan 2013 Posts: 80 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2013 Posts: 80 | Before the holidays, I searched several stores and did find several tubes of the 'older formula' on some store shelves (smaller Mom/Pop type stores). Some had both new and old and it was easy to compare the formulas and even the packaging. There is a Facebook page at: Facebook - Biotene. Not sure if we can repost those pictures here, so I am only including the link. Regards, Nancy
Nancy Age 56 at diagnosis Neck Lymph node removed 11/2012 Tonsillectomy perfomed 12/2012 - identified as primary SCC Left Tonsil with Left Node involvement, DX 12/2012 RX started 1/29/2013, finished 3/23/2013; Daily IMRT (35 Sessions) Weekly Taxol/Carboplatin (6 weeks) PEG placed after week 4 (3/1/2013) PEG removed 6 1/2 months later (8/12/2013) | | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Sep 2013 Posts: 105 | I looked up the ingredients in the 'BioXtra' products and they sound helpful for oral hygiene and for maintaining a moist mouth.
Perioextra also eludes to the same benefits but I did not find their list of ingredients directly on their site.
My husband will soon need a less irritating toothpaste and a moisturizing gel, from what I have read on this post BioExtra seams like the best option for now. Any experience with this product or any other suggestions are welcome.
So glad I found out about the downgrade in bioteen ingredients before buying the product. I have been informing the staff at the hospital about the change as they are unaware. I will keep them informed of better options so they can refer these to their patients.
You guys Rock! Sophie
husband 61@diagnosis painter 6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis 17/9/13 Dx(moderately aggressive) 24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube 2/01/14 (30 tx)rads 60gy N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes) Clear margin, close 2mm inner cheek 15/05/14 cellulitis 3/12/14 Chest CT Clear 27/02/15 cellulitis 8/6/15 cellulitis 10/6/15 Osteomyelitis
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Thanks, Sophie. There seem to be a few suppliers of Bioextra on Amazon and I'm curious about it. I'll flag the page and hope someone who's used it weighs in with an opinion. If I don't hear anything I'll probably go ahead and order a tube when my current stock of old Biotene runs out in the next month.
And of course I'll be using my OCF link when I do, as always.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Apr 2008 Posts: 117 Likes: 1 | If you go to pubmed you can find research on bioxtra and other products. Just type the word into the search feature.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Thanks for that, Andrew. There appear to be a handful of small studies and BioXtra fares well. In one it even scores higher than Biotene, which I'll assume was the previous formula since the study was done a few years ago.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Apr 2008 Posts: 117 Likes: 1 | Here are my recent PBF products. It looks to my untrained eye like the enzyme ingredients are still included. But I do not known how much.
Biotene PBF Oral Rinse Purified Water, Propylene Glycol,Xylitol,Hydrogenated Starch Hydrolysate, Poloxamer 407, Hydroxyethylcellulose, Sodium Benzoate, Flavor, Benzoic Acid, Mutanase, Disodium Phosphate, Sodium Phosphate, Zinc Gluconate, Lactoferrin, Lysozyme, Lactoperoxidase, Potassium Thiocynate, Aloe Vera Gel, Calcium Lactate, Glucose Oxidase, Dextranase. Contains milk and egg derivatives
Biotene PBF Toothpaste Active Ingredients: Sodium Monofluorophosphate (0.14% w/v Fluoride Ion)
Inactive Ingredients: Sorbitol, Glycerin, Water, Silica, Xylitol, Hydrated Silica, Isoceteth-20, Poloxamer 188, Cellulose Gum, Flavor, Sodium Benzoate, Mutanase, Lactoperoxidase, Potassium Thiocyanate, Glucose Oxidase, Mica, Titanium Dioxide, Lysozyme, Lactoferrin, Dextranase, Chlorophyllin-Copper Complex, Calcium Lactate. Contains milk and egg derivatives.
Last edited by Andrew111; 01-25-2014 05:18 PM.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,916 Likes: 63 | Just a quick update. The company that is making a prototype paste based on OCF's recommendations is going to have sample to us next week. This is just a first go around, but the groundwork that we laid with them was pretty specific. Good fluoride delivery vehicle, good antibacterial qualities, mild flavor, and a tissue soothing formula given how tender all of our soft tissues are. I optimistic that if they get this nailed we could have a product in 90 days.
Re the NEW Biotene PBF, they took out 3 of the 4 enzymes so they could still call it an enzyme product, and kept the cheapest one. Also the enzymes only work if all four are there together, as they are synergistic.
Last edited by Brian Hill; 01-26-2014 08:22 AM.
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Awesome news, Brian! You take care of us in so many different ways. Not just us, but you are taking care of the company making the prototype paste by helping them to make their product better!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Oct 2011 Posts: 67 "OCF Canuck" Supporting Member (50+ posts) | "OCF Canuck" Supporting Member (50+ posts) Joined: Oct 2011 Posts: 67 |
Pain late 2009. Dx as change in altitude. Sore spot on tongue late 2010. Dx as irritation. Leukoplakia Bx Feb 2011 - Lichen Planus. Bx May 2011 - Hyperplasia. Same sample retested as SCC. June 2011 Rt Hemigloss,ND,rff,33 Rads. Hosp for 15 days w/bi-lateral pneumonia. T3N1M0 Stage IV. | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Awesome, Brian! (or maybe, 'Awesome Brian!').
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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