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Relieved to read that you are home and procedure was completed as planned.

Hoping recovery goes smoothly for you,
Lottie


CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
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Administrator, Director of Patient Support Services
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Wishing you all the very best with a speedy recovery, Paul. be well!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2013
Posts: 94
Supporting Member (50+ posts)
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Posts: 94
Another wish for a speedy recovery!


36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



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Good to see your update!! Wishing you a speedy recovery..
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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"OCF Canuck"
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Yeah you're home - feel well... And that's an order!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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PaulB Offline OP
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I had my surgery on Thursday around 1pm. Anesthesiologist had to go through the nose again because of the limited mouth opening from trismus. My ENT said in post-op, you know there is 5% chance of stroke, I guess to get my approval, and didn't mention 5% chance of death too lol. I saw it was 25%, in another study, so was feeling confident at that point lol. Was in post-op around 5pm. My ENT said surgery went well, then corrected himself, and said very well. I had more pain than my usual dissections, and still took the morphine when I could, but didn't get to my room until 2:45am, so that didn't help. I was put in Step Down, Head and Neck, type ICU. I don't think I slept much that night, and anyway, by the time I was settled it was late.

I woke up to pain in the head, neck, shoulder, which I was given morphine. I had all the doctor's studies come see me that day, and had a visitor most of the day. The speech and language Therapist had to see me for swallowing issues. At some point they took me off morphine, and was given Percocet, which eventually makes me sick vomitting, and did so for the next day or so.

I didn't have a headache like I did on Saturday, which I say could have been caffeine withdrawal, but still did in the neck and shoulder ateaI had a slight fever, and when my ENT visited I was in the chair wrapped in blankets shivering, so he ordered blood cultures, chest x-ray, and antibiotics. This was the first time I saw him since post-op, and said how is the miracle man doing. He was happy with his findings, and told him my eye (my blinded eye) wasn't dropping like it was. He said that may be Horners syndrome due to the vagus, sympathetic nerves being taken out, and if that's all, were doing good. He said everything was so twisted up around the carotid from the radiation, fibrosis, he couldn't differentition the difference in

Turns out I had beginning of pneumonia, so was given a few IV's of strong antibiotics for a few days. I did have an incident with my vision later in the evening where I couldn't make out anything. I couldn't even operate the phone with disappearing, and moving display, and told the nurse, who I really couldn't see clearly, and everything else was a blur. This happened at every object I looked at. That went away in 15 minutes, and no one could say what from, and hopefully doesn't come back.

I was discharged on Tuesday, came in at 191lbs a few weeks ago, but went down to 175, they weighed me. Feeling weak and tired still, but feel better than yesterday, and so this will go on for a while, and taking oral antibiotics, tramadol for pain. I guess the two surgeries, and occlusion procedure in a week got to me.

Next steps will be all the follow-up visits starting next week.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Patient Advocate (1000+ posts)
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You remind me of an armor clad Energizer bunny, banging the drum while on tour on the battlefield, only to return a bit scuffed and tired. you are the man!


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Jul 2012
Posts: 3,267
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PaulB Offline OP
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I can picture that Don lol.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

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Posts: 1,024
Little steps Paul and 1 day at a time. I think you are doing incredibly well. Be kind to yourself, let yourself rest and recover.
Here's to your good health.
Tammy.


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Posts: 3,267
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PaulB Offline OP
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My voice is still low, coughing, left eye closing (Horner's Syndrome) probably from the vagus nerve cut, which involve these. Time will tell if these will come back, and what information I get moving forward.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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