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Joined: Jan 2013
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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,293
Likes: 1
[quote]The drug company is aware of this allergy and it is simple to test for Alpha-Gal but unless you search both Erbitux and Tick Bite together you will not find any information about it. Not in the literature or package insert or anything on-line.[/quote]
This seems criminal. If there is a known fatal reaction, or at least serious, it sure seems this should be noted on all information associated with the drug.
Clearly, the drug company would rather keep these things quiet, especially in very low incidence cases, but it is still quite disturbing to learn the FDA does not have more standards in place to warn practitioners.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Jun 2011
Posts: 17
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Joined: Jun 2011
Posts: 17
Some doctors seem to know about it. I found out about the tick bite from someone in this group whose doctor had warned him. I agree, it is criminal. One death or a thousand it does not matter. A person should be able to make an informed decision if to use a drug or not. For someone to die a horrible death like this is just not acceptable - especially when all it would take is a simple blood test to check for the antibodies.

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