| | Joined: Mar 2011 Posts: 16 "OCF across the pond" Member | OP  "OCF across the pond" Member
Joined: Mar 2011 Posts: 16 | So I've been on MST 20mg tablets for about 4weeks taken in the morning then 12 hours later at night anyway sorry for tmi but the constipation is so bad on them I have tried laxatives and stool softners and nothing's working even tried home remedies too . Ive got to the point where the constipation is too painful . I feel I can come off the morphine and be ok on normal paracetmol and ibuprofen for the pain. Anyway my question is has anyone been on this kinda dosage and just stopped taking it . I'm really scared incase I get withdrawals but I don't want to lower the dosage as I just want to stop the constipation by coming off it as soon as . As I cannot cope with the side effects off it anymore they seem to have gotten worst than when I started . Thanks in advance 
Age 20 Gemma, Dx nov 2010 MEC ,surgery in Dec 2010 , surgery in feb 2011,clear margins , metastatic spread cervical lymph nodes may 2013, modified radical neck dissection, IMRTx30 60gy no peg
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I don't think you will have withdrawal issues at that dose and length. There are tons of things to do to help your constipation. Even a tablespoon of mag citrate before bed until things get moving would be very helpful. Drink lots of water and eat soft cooked veggies for a while too.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Pineapple and/or pineapple juice, apple cider, extra fiber (like benefiber) will all help with the constipation.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 78 | Try lactulose/generlac. That stuff is strong.
Andrew
age 25
early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
| | | | | Joined: May 2013 Posts: 63 "OCF Kiwi Down Under" Supporting Member (50+ posts) | | "OCF Kiwi Down Under" Supporting Member (50+ posts)
Joined: May 2013 Posts: 63 | You should be OK at that dose but it depends what dose you got up to and how long you have taken to get down to 20 (although being on 20 morning & night for a month should be good). It took me 2 months to get from 80 morning & night down to nothing. I got some minor withdrawal symptoms at the end but toughed it out for 4 days and then was normal. That was only about a week ago.
Good Luck!
39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished chemo (cisplatin) & 30 rads
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