| Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2012 Posts: 111 | I really hate the way these big companies play around with our lives to make a bit of extra profit for the fat cats. It makes me so angry. Thanks for alerting us to this Brian.
I gave up using Biotene mouth gel and mouth spray a few months ago when it became unavailable in the UK for a while (possibly around the change over time?). As a replacement I found BioXtra, which I find less sticky than Biotene, and their spray is pleasanter too. It is available on Amazon for about the same price and I see they do a toothpaste too. I have never used the Biotene/BioXtra toothpaste as I use Colgate's Duraphat 2800ppm Fluoride toothpaste which is prescribed and recommended by my oncology dentist.
While I was researching alternatives to Biotene online I came across some interesting information on dry mouth products showing which ones are acidic and therefore should be avoided. Biotene and Bioxtra where 2 of the few that were OK, many were too acidic to be recommended. I wonder if the new Biotene formula is still OK. I have not been able to find the article again, but I perhaps I posted this info here so I will go and see if I can unearth it again.
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol. 10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12. 12/07/11 RIG. RIG removed 05/05/12. 4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | Joined: Apr 2012 Posts: 111 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2012 Posts: 111 | To follow on from my post a few minutes ago... OK I've found my previous post which was nearly a year ago, and the link to the information on acidity of saliva substitutes didn't work! So it looks like I changed from Biotene a year ago. For information on acidity of saliva substitutes try this link http://www.googlesyndicatedsearch.com/u/ukmi?q=right+product&sa=Google+Search and click on the top link which should be called 'Saliva substitutes - UKMi' this should open a word document. It has been updated in February, since I looked at last November, and guess what, Biotene is now listed as being acidic. I hope you find this helpful. The information is provided by UK Medicines Information (UKMi)which is a UK NHS pharmacy based service. http://www.ukmi.nhs.uk/ukmi/about/default.asp?pageRef=1
Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol. 10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12. 12/07/11 RIG. RIG removed 05/05/12. 4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | [quote=Brian Hill] Look how many people will by a product that says "natural" on it because somehow that think that is better for them. That term means less than nothing!!! Cancer is natural, so are tons of poisons. [/quote]
Ironically the term when used in meat products is the most regulated throughout the entire food change including "organic".
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Well put, Brian. The two tubes I have on hand, allegedly the PBF, have next to no info on them. Only: "Plaque-biofilm loosening formula" (whatever that means) and a little tag "with xylitol".
The single active ingredient on the back is: "Sodium Monoflurophosphate (0.14% w/v fluoride ion)". It's purpose is "Anticavity".
I'm comforted by the ion.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Without going into the differences in all ingredients, I believe you can tell the �old/good� from the �new/junk� by the front of the package.
I have the Gentle Mint Gel flavor (which I�m pretty sure is the �old/good� stuff). On the front in red it states "Protein-Enzyme System", and also "Gentle, Low Foaming Formula", and �Formulated to Not Irritate a Dry Mouth�. On the back the only active ingredient is Sodium Monofluorophosphate (0.14% w/v fluoride ion), and it notes �Naturally Sweetened with Xylitol�.
I found both the new and old versions at a local chain pharmacy this week. The front of the "new/junk" formula states instead in red "Essential Fluoride Tooth Protection", and also "Gentle Formula", and �Designed not to Irritate a Dry Mouth�. It also has in red �New Improved pH Balance�. The only active ingredient is Sodium Fluoride (0.15% w/v fluoride ion) and no Xylitol. My understanding is that sodium fluoride is the cheaper fluoride and not as good as the other one.
There used to be a PBF version of the toothpaste and I haven�t seen that in a few months. I was able to find the �old� version of the Gentle Mint Gel in two stores this week and bought what they had on the shelf. The �new� formula was in the Fresh Mint Original flavor. I noticed the copyright date differed from the old and new versions � new had 2013 as the date.
I was able to find the PBF mouthwash in the same stores which appears to be the old formula for that (copyright date of 2010).
From what I read, one of the �improvements� they added is a foaming agent which is noticeable right away and burns your mouth.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Used copy/paste for above message - missing text issue strikes again. Sorry!
I tried to post a message on how to tell the difference between the old and new (improved) toothpaste tubes. I'll work posting it later when I have time.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Sep 2013 Posts: 9 Member | Member Joined: Sep 2013 Posts: 9 | Has anyone tried the Epic Dental Xylitol products? I've seen them advertise online,but hoped to hear about someone else's experience with them before buying.
Wife/Caregiver 6/5 ENT visit 6/11 FNA biopsy on lymph node 6/13 DX T2N2b stage 4 SCC on right tonsil metastasis to lymph nodes on right side 7/8 first chemo using Cetuximab 8/20 radiation oncologist initial visit 8/21 dental clearance Cisplatin and Radiation starting Sept 9 2nd Cisplatin Oct 1 Radiation completed 10/24 | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | I checked out their website, cats. Looks impressive from the reviews, but of course those were non-cancer patients. I think. I too would be curious to know about it and might just go ahead and order some anyway. In which case I'll post results. Thanks for the tip.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2008 Posts: 551 | Well crap... I'm so glad I found this thread posted on the OCF Facebook page! This is so very lousy to learn. Last time I tried a conventional toothpaste, I had to spit it out within 10 or 15 seconds, it burned so badly. I've been wondering if Tom's children toothpastes would work for me. They won't have the enzymes, of course, but maybe I could tolerate them.
Damn, I hate corporations.
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08 Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016 Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | Joined: Jun 2013 Posts: 18 "OCF Down Under, Kiwi" Member | "OCF Down Under, Kiwi" Member Joined: Jun 2013 Posts: 18 | I am using "Sensodyne" Rapid Relief toothpaste as advertised on TV here in New Zealand. It works and does provide short term pain relief and is an excellent pseudo mouthwash.
Osteosarcoma radiotherapy right forequarter amputation 1961 Carcinoma of Right Larynx with subglottic extension Total laryngectomy with right radical neck dissection 2000 Tracheostomy Radiotherapy June-July 2001 Aggressive recurrence of the same May 2013 Neck Fistulas June 2013 P.E.G July 2013 Mi-key Oct 2013 Currently Chemo was : XELODA (Capecitabine) Now Carboplatin and now Gemcitabine !
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