| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Steve, hope it turns out as you are hoping. Please let us know your progress so it can benefit other long term survivors who have the same problem.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | Ha this is great. I am in my bed at Mission Hospital in Orange County , CA. While looking on ways to treat my neck pain, botox is the plan, I came down with Pneumonia. After doing some swallowing tests yesterday they believe aspirated pneumonia. I guess all that food is not going out through my nose! some is going into my lungs!
from the radiation ,imrt, wide field, my epiglottis took a beating and does not close over my trachea, oooh this is no fun at all
So this will clear up and I will take some therapy, and get back to my new normal.
I would also there are really some side effects for some radiation patients. But it beats the alternative and other than these couple of minor problems, i am living well!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
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