| | Joined: Oct 2013 Posts: 8 Member |  Member
Joined: Oct 2013 Posts: 8 | Hi Sandy,
You are in my thoughts and prayers. You are brave. You are strong. You are going to be fine. Your surgery will be a success and your recovery will be complete. I believe this and will wait to here the good report. God Bless You today and always!
Kimberly
1/2013 Skin rash biopsy Dx-Pityriasis Rubra Pilaris
CT 2/2013 tumor on floor of mouth (ordered by dermatologist due to biopsy findings)
5/8/2013 ENT RT Submandibular Gland and Partial RT Sub-lingual Gland removed
5/9/2013 MEC of sub-lingual salivary gland with peri-neural extension
6/10/2013 RO IMRT 5 days a week for 7 weeks. Ended 8/10/2013
7/6/2013 Home care Intake (OT,PT,ST)
7/11/2013 PEG Tube insert
7/19/2013 PEG Tube removal...severe infection hospitalized
9/5/2013 F/U RO
12/5/2013 CT?
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Sandy - I think your after surgery post was moved to Currently in Treatment forum. I wrote you a long response there.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Hi Sandy,
Just another voice in the crowd, wishing you a speedy and full recovery from what you are going through!
As fearsome as the prospect appears, and I know that it does appear very fearsome, you will get through and eventually return to normalcy.
Know this: Fear of the unknown is always worse that that unknown will every be. What you are facing is not as bad as your fears.
I'll not tell you that it's going to be fun, all I'm saying is that you are envisioning the end of life as we know it, and that it is not that.
Good luck to you, we are all in your corner, you are never alone!
Bart
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Hi Sandy,
Just another voice in the crowd, wishing you a speedy and full recovery from what you are going through!
As fearsome as the prospect appears, and I know that it does appear very fearsome, you will get through and eventually return to normalcy.
Know this: Fear of the unknown is always worse that that unknown will every be. What you are facing is not as bad as your fears.
I'll not tell you that it's going to be fun, all I'm saying is that you are envisioning the end of life as we know it, and that it is not that.
Good luck to you, we are all in your corner, you are never alone!
Bart
PS, read ChristineB's intro, or mine to see two examples of what I'm saying and why I'm saying it.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Sep 2013 Posts: 94 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2013 Posts: 94 | Hi Sandy,
Just wanted to send you some more speedy recovery wishes. I can imagine how scared you must be, I am also for somewhat different reasons, but lets think that this too shall pass.
Best of luck!
36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound
| | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | It will, Ambra, it surely will! FWIW, you have my very best wishes for a speedy, successful and complete defeat of the cancer, and recovery to normalcy!
Bart
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
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