| Joined: May 2013 Posts: 134 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 134 | Tina77, I just had a chuckle. Had a swallow study as well. When they hand you something to eat or drink and they have to also tell you what it is, well that can't be good...
This is applesauce.
This is graham cracker. Ha!
That aside the technology is incredible. I went through some swallow therapy which cost a stinking fortune and I still didn't "pass" the second study. I decided close was good enough. Without exception, when I choke it's right after I did something stupid (too big a bite, too dry a bite with no liquid, etc). The therapy was beneficial but common sense is as well.
Dx March 2011 via FNA (49 yrs old) SCC BoT HPV+ exact strain unknown Stage IVa T3N2cM0 Cisplatin x 3, IMRT x 40 (7267 cGy) One node removed post-treatment (rad dmg) Clean PET 10/28/11 Swallow therapy | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Sounds like me, Chris. I failed my barium swallow test miserably so swallowing therapy was ordered. I did 35 1-hr sessions of therapy and still couldn't do much better than I did when I first started them. I did learn to bend my head down when I couldn't swallow something, and also turn my head from one side to the next to swallow. Yippee! Insurance paid some but not all and it was expensive. It might help others, but to me it was a waste of time and money. Your "common sense" approach is better than the therapy was, hate to say. Julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | "OCF Canuck" Platinum Member (300+ posts) Joined: Sep 2012 Posts: 381 | Chris, I would have preferred applesauce, I got butterscotch pudding - ughhh.
I am, as always, so upset when I see that people cannot afford part of the treatment options that are available. Not to get political on anyone, but I was not out of pocket one penny, nor did I have to process anything through an insurance plan for speech, physio, nutritionist, hospital, you name it. Perhaps the US government needs to take a look at the (much maligned) Canadian health care system.
Tina Diag: Aug. 13/12 T3N0M0 50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V Surgery October 11/12 Chemo/rad on hold due to clear margins and nodes Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely. Dec 16/13 - anomaly confirmed artery, all clear nickname: "get 'r done" Plans: kick cancer's butt
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | HI Tina,
Since I don't want to say anything political, I won't say that we in the US have been well and truly hosed since we decided that Medicine was just another business in a for-profit world.
Nope, I wouldn't say that, even with a mouthful...
Last edited by Bart; 10-17-2013 06:48 AM.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2011 Posts: 805 | And in your not saying that I would say I agree...if we were saying it!
Kathy wife/caregiver to: Kevin age:53 Dx 7/15/11 HPV16+ SCC Stage IV BOT/R Non smoker, casual drinker 7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11 PEG placed 9/1/11 Removed 11/8/11 Clear PET 10/12 and 10/13 and ct in 6/14 | | |
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