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| Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | [quote=Shane's] Also surprised it never showed on a CT. [/quote]
My point as well. 25 doctors in approximately 8 months, tests galore and no one noticed? There's just a lot that doesn't add up here.
BUT... it's not cancer!
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jul 2013 Posts: 114 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jul 2013 Posts: 114 | Shane, it did show up on the CT scan, but radiologist missed it first go round. He said they don't see this problem often. It was only when I started telling him my symptoms did he find this and reported it to the surgeon. This is very uncommon to say the least. I don't think they fixed it, because I still have pain when turning my neck. I'm ready for it to be healed, so we can get it hopefully fixed.
It's actually the greater cornu of the Hyoid Bone that they clipped off.
Have a good day! | | | | Joined: Jul 2013 Posts: 114 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jul 2013 Posts: 114 | I'm not a doctor or radiologist, but I do feel they don't look at the entire picture when making a diagnosis. They briefly look at scans and it could have easily been missed. I told the radiologist my symptoms and ask him to please review my images again. He did and found it immediately. | | | | Joined: Jul 2018 Posts: 4 Member | Member Joined: Jul 2018 Posts: 4 | I decided to post here as my case is kind of identical. Pain in the lingual tonsils. Lots of ENT visits, and finally, meet the head of oral cancer surgery in UCLA, who told me that my hyioid bone is protruding and causing pain and even a hard surface feeling when touched on the area of my lingual tonsils.. My lingual tissue is large due to reflux. I was also told this is rare, and that usually happens to people who protrude their tongue so far, you can see their epiglottis.
The only reason I put this here is for the future, if one has asymmetrical lingual tonsil, and pain, this could be an alternative. I spend 4 months of testing.
38 yrs old F
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