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#171618 09-26-2013 07:50 AM
Joined: Sep 2007
Posts: 148
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2007
Posts: 148
Six years cancer free. Now growing very fast in my mouth again. No dr yet. No insurance. Dr app on the tenth. So angry. I went through 37 radiation treatments in 07 I slept that whole month I was able to then. Now I am on my own with no family close to help. Really scared


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
Lepreckaun #171620 09-26-2013 09:24 AM
Joined: Jun 2007
Posts: 10,502
Likes: 1
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,502
Likes: 1
Im very sorry to hear about your recurrence! Have you called the American Cancer Society yet? They offer help with transportation for cancer patients. It takes a few weeks to set up so dont delay. I am a volunteer driver and take patients to their doctor appointments or treatments. This service is available thru out most of the US.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Lepreckaun #171625 09-26-2013 02:48 PM
Joined: Dec 2010
Posts: 5,260
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Hi there are you sure its cancer and what kind did you have? Welcome....


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Lepreckaun #172401 10-11-2013 10:38 PM
Joined: Sep 2007
Posts: 148
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: Sep 2007
Posts: 148
Went to a new dr since I moved from Ga to ND. This doc don't know his butt from a hole in the ground. He did refer me to an ENT hopefully not all drs here are non caring. I know what's in my mouth I've been there and got the tee shirt. It squamous cell carcinoma. Its back and it feels like its in my throat as well. ENT hopefully will prove me wrong....but if he proves me right well then......


49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
Lepreckaun #172499 10-14-2013 05:27 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Fingers and toes crossed. What the h#%* are you doing in ND?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

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