I am a new member.I am 4 years out from SCC Base of tongue w mets to neck. Stage 4. Radiation x 35. Cisplatin, total neck dissection. Many after effects. I lost abt 60% og my hearing from Cisplatin, my sense of taste waxes and wanes, Biggest thing to me is the bone loss in my mandible. Very pronounced. I have dental implants that have been relined 3 times to fit. My appearance has changed dramatically. Not an issue with me as I am glad to be alive. Anyone else dealing with similar bone loss?

Welcome to OCF! You have found the best place for correct medical info and support.

It sounds like you have been thru quite alot over the past 4 years. On the bright side, congrats on being a 4 year survivor! I like your positive attitude too!

I was not able to get implants so unfortunately I do not have experience in exactly what you are going thru. I dont think many members have been able to get implants. As far as your issue of bone loss, thats more common. This is probably why you havent had many responses yet. Ive lost half of my lower jaw to oral cancer and am now disfigured so I can sympathize with your dramatic change in appearance comment.

Have you done HBO (hyperbaric oxygen treatments)? Ive had many issues with my remaining jaw and have done quite alot of the dives. This is very important if you are getting teeth pulled. It can help osteradionecrosis which is what you might be going thru with your bone loss. What kinds of doctors have you seen? has anyone suggested doing HBO?

Best wishes!