#17132 03-02-2005 09:27 AM | Joined: Mar 2005 Posts: 6 Member | OP  Member
Joined: Mar 2005 Posts: 6 | New member and cancer patient. Diagnosed in Feb and had surgery Feb 9. Had tumor in cheek removed plus a grinding down of my left mandible so mandibular artery and nerve were untouched. Also had 14 lymph nodes removed of which the first 3 had evidence of cancer. I also had some teeth removed that would be in the radiation field to help prevent infection. I underwent my CT simulation today and start radiation once a day for 6 weeks on the 8th of March and will meet with the medical oncologist about chemotherapy. I've decided to accept the treatment plan that will give me the best chance for survival.
About all for now, thanks for reading. | | | 
#17133 03-02-2005 09:55 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Welcome Morris
You have found the best possible place to help you through this period of your life .
Most of the problems you will encounter in the next few months can be addressed here , we have a lot of very caring and knowledgeable people on this forum.
If you have been checking out the site hopefully you already know, we advocate your going to a comprehensive cancer center as opposed to your local physician.
Most of us only have one shot at getting rid of this disease, and your best shot is at a cancer center with Head and Neck experience.
Please keep in touch and let us know how you are progressing.
Take Care
Marica
If you need any
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#17134 03-02-2005 09:57 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | I should NOT have clicked that button....
Sorry , to finish my sentence.
help please don`t hesitate to ask.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#17135 03-02-2005 10:15 AM | Joined: Mar 2005 Posts: 6 Member | | OP Member
Joined: Mar 2005 Posts: 6 | Thanks Marcia, I am at the University of Fl and a Cancer Center with a multiteam approach. Oral surgeon removed the tumor and did the mandibular surgery and the ENT surgeon did the neck resection and lymph node removal. I'm now into the radiation phase and soon chemotherapy. Thanks for your concern. I guess from what I've read here on the site I was a Stage IV.
Morris | | |
#17136 03-02-2005 03:20 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Welcome Morris
Sorry you are now a cancer patient but you seem to have had efficient care so far with no time wasted.
You have found a wonderful source of support and information here. Someone will have had a similar cancer and know what you could expect. Have you checked the general info pages here? They are excellent.
Please let us know how you are progressing, love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#17137 03-02-2005 10:50 PM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | welcome morris u come to the right place uwill find everyone so helpful plus a lot of empathy all ways remember CANCER HAS NO BARRIERS WE ALL HELP EACH OTHER HERE ifeel ive found some kind of sanctury and its a good feeling
god be with u as u travel the road to nomalaty regards maz | | |
#17138 03-03-2005 12:34 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Morris, welcome to the site. Sorry you had to find us. You'll find a lot of information here on what is going to happen on your immediate horizon. A lot of us had Stage IV tonsil cancer and have made it through the process, so hang in there as things progress, it will eventually be over and recovery will be on the way. You are wise to hit this thing with everything you can the first time out.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#17139 03-03-2005 04:20 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Sounds like your team has the same approach mine did, cut, slash & burn maybe. I am cancer free today & have no regrets about the aggressive course of treatment. Keep yer chin up, you can do this.
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#17140 03-03-2005 04:34 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 |
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#17141 03-03-2005 10:16 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Welcome Morris, please keep us updated on your progress...God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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