| | Joined: Sep 2013 Posts: 6 Member | OP  Member
Joined: Sep 2013 Posts: 6 | Thank you all. He has throat pain, and numbness below ear and neck near the stitch areas. he can talk but unable to open his mouth normal. There is a cut in cheek too that got pus.
His IV area is swollen and the nurse tried the other hand with no luck. Starting to feel the pain i guess and depression and fear sinking in. This is all so sudden until last weekend, it was normal life going to work coming home to a loving family & now in bed with all this pain is making him anxious.
Any tips to turn the anxiety and or how to cope up? Make him listen to something or talk about something or what will help? Any suggestions please?
Thanks for all your kind words | | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | Since he is in India, I would suggest that he have a chat about his anxiety with a Buddhist monk.
And while you probably know this, I mention it for the benefit of others on this board as well.
Buddhism is not about religion, it's about precisely your friend's problem, i.e., how to calm the mind and eliminate fear and anxiety.
Johns Hopkins is running a program to deal with that also, but that is of little use to your friend in India
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Hi CTS, your friend is fortunate to have you for his support. It will take around 7-10 days to recover from surgery and in the meantime, your friend will get reports which will tell whether the margins were clear and how's the lymph nodes that were extracted.
Depending on the result, oncologist will decide on further course of treatment. If things are good, your friend may need few monthly follow-ups and then every quarter. If not, he may have to go concurrent chemo-radiation. Tell your friend to be brave - will to win this disease is what helps the most.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Sep 2013 Posts: 6 Member | | OP Member
Joined: Sep 2013 Posts: 6 | Thanks again for the kind words. The Dr sat with him for a bit today and that helped him gain some confidence.
He feels a lot of irritation(pain) when he tries to swallow liquid ( not too much just little bits using straws ). Is this normal? Wishing Praying and Hoping results are good.
I appreciate your kind words. Means a LOT.
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Hi CTS, everyone is different. It helps some to be in touch with reminders of loved ones, places and times w/pics nearby and mementoes. It helps me more than I would have guessed to stay in touch with my "pre-cancer" self.
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Sep 2013 Posts: 6 Member | | OP Member
Joined: Sep 2013 Posts: 6 | Hi - he is having burning sensation in mouth that he is unable to bear with. it seems to have worsened today and he is unable to bear it. Is this normal? Any ideas? Some injection helps him for 1 - 1.5 hrs. then it starts again. he is unable to bear it.
Has NG and tries to take through straw as well. Burning sensation is too much... | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | He can ask for pain medication. Also pus???!! That's an infection. He'll likely need antibiotics. Best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Burning sensation could be due to Thrush. Kindly ask doctor to inspect and give antibiotic to get rid it of it.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
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