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#170763 09-09-2013 01:13 PM
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Ripley Offline OP
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I think i posted this in the wrong place. On aug 9, my mouth swelled. Right side along upper teeth. Big bump about the size of my thumb showed up on roof of mouth. Swelling and sores healed after i quit chewing. Bump is hard and still there. Va said i had bacterial infection. Antibiotis have done nothing. Headaches bad. Gained about five pounds. Hurts to eat certain foods. Noticed new sores on the lump this morning. Scared. Made appt w oral surgeon but no insurance and not sure how i can get through if its cancer.

Ripley #170771 09-09-2013 02:55 PM
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It is best to wait on the results with oral surgeon. Not knowing is rough but patience is key. If you see oral surgeon and are not at peace with his diagnosis then look for another source. Are you a veteran? Others will advise from this group but key is to know what you are dealing with. Then the advice will flow. Take some deep breaths until you know for sure.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
Ripley #170781 09-09-2013 04:14 PM
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Thanks. Yes i am a vet, but va dentist won see me. Said I don''t qualify.

Ripley #170789 09-09-2013 05:01 PM
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Ripley, this would be considered medical not dental. A biopsy is a medical procedure. I suggest seeking out an ENT to get checked out. Hopefully one who specializes in oral cancer. Im sorry but I dont have info about what VA would offer you. Maybe try calling the phoen number on the back of your medical card.

There are all kinds of things that could be going wrong in your mouth. If you smoke, chew tobacco or drink alcohol, stop doing those things immediately. They would all irritate your mouth and can cause a sore not to heal.

Oral cancer does not always hurt. I had no pain at all, while others have had alot of pain. It does not usually show up as a large sore out of the blue. Im not a doctor or medical professional but to me it sounds like something irritated your mouth. Its best to get checked out so you know what is going on for sure.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Ripley #170813 09-09-2013 09:39 PM
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I quit chewing two weeks ago. The right side of my upper has healed. there are no red spots, no swelling along the right side. The major lump has not gone away in a month, and two red spots have shown up. I stopped in to see a dentist this evening, and he said he thought it was cancer. Part of the lump moves, is soft, the other part is hard, unmoveable. Its odd. No sore throat. no blood. Gaining weight, not losing weight. Some headaches, off and on. every now and again, it feels like needles in the roof of my mouth. I don't know what to think

Good to know about the biopsy medical procedure thing. I will have medical insurance next month (switched jobs).


Ripley #170928 09-11-2013 11:19 PM
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You might want to seek out an ear nose and throat doctor or Ottolyarangologist. That is a different type of doctor than an oral surgeon. If the oral surgeon is not comfortable with your case or you are not comfortable with him you might want to ask him for a referal to an ENT in your area. Also, if there is a VA hospital in your area you might go there to see if they have an ENT who might be able to look at you. Your headaches could be caused by loss of the nicotine from stopping the chew and my tumor was not loose like you described but was hard and very much attached. The ultimate answer is for one of those doctors to take a biopsey of it and find out once and for all what it is.


In 1994 I found a 3cm tumor on my right tonsil. After 3 rounds of chemo, I underwent a radical neck dissection with a peck flap. I had a reoccurance which required twice a day radiation treatments and then had 19 years cancer free. I then found a very small tumor on my right tonsil. It was removed. Then I found a 1 cm mass near the base of my tongue on the left side. I had two partial glossectomys with bad margins and then then underwent Brachytherapy.
Ripley #170932 09-12-2013 04:25 AM
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If the dentist said he thought it was cancer, you should follow-up ASAP with an ENT who deals with cancer, however you can do it, so they can biopsy, maybe do other tests. Waiting a month is too long. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Ripley #170935 09-12-2013 06:19 AM
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I agree with Paul, a month is too long. Good luck and let us know what happens!


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
Ripley #170948 09-12-2013 12:55 PM
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I triple the motion... do not wait a month...


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Ripley #171030 09-13-2013 06:57 PM
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Saw the oral surgeon. He looked at it. X rays. The headaches are from withdrawl. I have an ulcer that is healing well on its own. The lump is a tori bone. My old x rays and new x rays confirmed. I didnt notice it before. that is the status.

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