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Pedro #170916 09-11-2013 02:52 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Glad to hear you have gotten thru your first one. It wont be so intimidating after this first one. Having the support of others going thru treatment with you is important. I had 2 older gentlemen pals who would save me a seat every day and check up on me to make sure I was eating and not still losing weight. Those guys were the best!

We will be here when you need us so feel free to ask questions. I suggest you read and educate yourself so you can be an informed patient and advocate for yourself if you need to.

Best wishes!!!



PS... Check your messages. Take a look towards the middle of the top by where it says My Stuff. You should see a tiny flashing envelope, click on it and review the link I sent you. Its important to add a signature and the link give detailed instructions along with other helpful info.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Pedro #170917 09-11-2013 02:54 PM
Joined: May 2013
Posts: 187
Likes: 3
Senior Member (100+ posts)
Online
Senior Member (100+ posts)

Joined: May 2013
Posts: 187
Likes: 3
Stay on the journey Pedro. That mask makes you feel helpless the first time. I wept a little and prayed the first time. I then learned to manage my breathing and closed my eyes. It actually became a good routine for thinking through life's issues. I was without issue for 34 of 35 treatments one time new meds gave me shortness of breath. The team on site was helpful and a change in meds fixed that. We are here for you.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
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