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| | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: May 2013 Posts: 134 | Went for a brisk run yesterday and my old friend is still around (barely). I'm getting close to two years out and thought it would be gone. Anyone out there have it go away and roughly how long post tx?
Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
| | | | | Joined: Jan 2013 Posts: 57 "OCF Canuck" Supporting Member (50+ posts) | | "OCF Canuck" Supporting Member (50+ posts)
Joined: Jan 2013 Posts: 57 | Hi chris
Mine is mostly gone now, just when I over exert myself I still get a bit of a buzz, six months out since end of tx poss less effects due to lack of chemo
46 yr old non smoker moderate drinker
Lump on neck
Dx branchial cyst by fna mar 2012
Op to remove dec2012 biopsy back hpv 16 scc
Starting rads jan 31 no chemo docs say?
Finished mar13
Pet scan june 30 NED :)))
Back to work and enjoying life
Checkup aug 12 all good
| | | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: May 2013 Posts: 134 | It's a minor thing and I'm NOT complaining!
Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Mine has become quite attached to me Chris. 10 years and it just hangs around. The only time it has been an issue was walking down the subway steps in Japan. I learned quickly to never look down as I am going down stairs.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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