#17023 02-12-2005 09:04 AM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 62 | I am now approaching the 2 year mark from my recurrence (March). However, this week at my regularly scheduled 6 week check-up at the Dentist he noticed a white spot about the size of a grain of rice. He thinks it might be scare tissue, but has never mentioned it before.
The next day my family Doctor confirmed the spot and feels it may be scare tissue as well. But, again he has never mentioned seeing it before either.
I had an appointment with the Head and Neck Clinic for March 3, 2005 but it has been moved to next week thanks to my Doctor.
I am going through all the "What Ifs" again and feeling a bit down. So am I over reacting? Am I being silly? Or is this a valid worry?
David | | |
#17024 02-12-2005 11:17 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi David
Well if you are being checked every six weeks they are not likely to have missed anything, but at the weekend and at 3 in the morning we are all at our worse.
So good they have moved your date to next week, come back and tell us how it went..
Sunshine...love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#17025 02-12-2005 01:44 PM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jul 2004 Posts: 188 Likes: 1 | David,
I'm sure it was an inadvertent typo, but here's hoping it's just what you typed.. "scare tissue".
Hang in there, and remember what's been said here many, many times "It ain't cancer 'till the pathologist says so"
Good Health
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun.
It's always something
"Adversity doesn't build character, it reveals it."
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#17026 02-12-2005 02:23 PM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 62 | Thanks Chuck. I did mean scar tissue. Although at times when I look at them the scars are a bit of a scare. Just a little beside myself today.
My apologies to others who read this and picked up the spelling error. I tried to edit it but was unable to.
And yes I do know the saying "it isn't until they say it is." Just having a hard time getting my mind to go that way.
David | | |
#17027 02-13-2005 11:25 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hang in there Dave , feeling a wee bit scared is absolutely normal.
We don`t for one moment think the nasties are back. You are too much on the ball with your examinations.
If you can find a post here with no spelling errors....nuff said.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#17028 02-13-2005 01:33 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi David, I agree with the others. WE ALL GET
NERVUS when they find some thing. I will say
a prayer on you that it is nothing. Please let
us know what the Doctors say.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
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#17029 02-13-2005 01:37 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hoping that it's a minor setback Dave. How long has it been there? I think your reaction is normal. Thats if theres anything normal after oral cancer. Thinking about you and hope the ENT has good news.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#17030 02-13-2005 03:11 PM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 62 | I'm not sure how long it has been there. I really can't feel anything with my finger. I also have very little feeling on that side, so if it hurt I wouldn't really notice it. And I can't see anything because the tongue doesn't move all that easy.
This may sound a bit wacked but to be very honest what made me think that something might be wrong was my cats. Actually one more so than the other has been very interested in my mouth. They kept sniffing at my mouth and no it's not morning breath or bad breath..........:-)
This made me think something might be happening that I wasn't aware of.
Thanks for the kind words and prayers, I will let everyone know what they say as soon as I get the word.
David | | |
#17031 02-16-2005 11:32 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | No over reaction, friend. When you have had cancer, anything out of the ordinary requires your utmost attention.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#17032 02-18-2005 03:26 PM | Joined: Mar 2003 Posts: 62 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2003 Posts: 62 | Good news, it was scar tissue as they had thought. Apparently it was where the failed flap was attached and is just showing some white coloration.
I can honestly say that I was very relieved and let out one loud sigh of relief. I think I even did a bit of the yippee thing as well.
The Head and Neck Team gave kudos to my Dentist and Family Doctor for being on top of things and so do I.
So I will have my next check-up in 3 months and when they tell me all is well I will have made it to 2 years. Will I celebrate? You can bet on it. I may even be exchanging "I Do's" this summer if all goes well.
Thanks again to everyone who had kind words and prayers for a positive outcome.
David | | |
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