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Joined: Aug 2013
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Joined: Aug 2013
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Well I am happy to have a support group to turn to as there is not one locally. I just completed Surgery on April 20th and 36 radiation treatments mid July. I am doing well...Stage II cancer with some facial nerve involvement no lymph nodes although the margins were questionable. Can anyone relate?


Cheryl
Joined: Dec 2010
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
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Hey Cheryl... I'm a Cheryl tooo - welcome


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jun 2007
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Administrator, Director of Patient Support Services
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
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Welcome to OCF! Glad you have found this site to help you with info and support.

Where was your cancer located? Oral cancer can be in many different places. It seems to be most commonly found on the base of tongue (BOT), sides of tongue, and tonsil area. Mine was behind my left top molar and also inside my left cheek, then it was in my jaw bone.

Best wishes with your recovery!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2013
Posts: 1,294
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Patient Advocate (1000+ posts)
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Hi Cheryl,
Welcome to OCF. Seems like you have made it mostly through treatment fairly well. There is still lots of advise here for you dealing with side effects both short and long term. welcome, don


Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
Joined: Jul 2009
Posts: 1,409
Likes: 1
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,409
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Cheryl, welcome. Your situation sounds like a lot of us and we're here to help. How are you coping with the residual effects of the rads? Are you able to eat solid foods?

Please ask any and all questions you can think of. Very glad to read that you've gotten through the tough stuff!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18

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