#17001 02-10-2005 11:31 AM | Joined: Feb 2005 Posts: 14 Member | OP  Member
Joined: Feb 2005 Posts: 14 | Just stopped by to say hello, had never thought of looking for a forum before. I have been ok now for 13 years but still get terrified every time I get a cold or a spot. I had a Hemi Maxilectomy, half the roof of my mouth removed by surgery. I remember so well levering my mouth open with lollipop sticks because the scar tissue had contracted so much and needed to be worked in. anyway it's late here (UK ) and the typing is keeping the wife awake so I must quit. If I can help anyone, anytime, with this problem let me know, I am Ok so far but every day is still beautiful. Regards
to all users.. Dave | | |
#17002 02-10-2005 12:29 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Welcome Dave and it's great to have you here! Congratulations on your 13 year survival and sharing your story with us.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#17003 02-10-2005 12:33 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thanks so very much for sharing your story, Dave! God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#17004 02-11-2005 01:49 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Dave, welcome to the site. Always nice to hear of a long term survivor of this nasty disease. Some of us newbies need the positive message you veterans have to provide. Look forward to your help for those just joining the board in the future as that is a big reason for our existance. That is, helping people get through the experience.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#17005 02-11-2005 08:24 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | hi dave,glad to hear the feeling has not left u i.e. every day is beutifulday. iam 1yr and 3mnt surviver ,braest C throat C EVERY DAY IS XMAS DAY FOR ME.you take care dave regards maz | | |
#17006 02-11-2005 09:05 AM | Joined: Apr 2002 Posts: 80 Likes: 1 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Apr 2002 Posts: 80 Likes: 1 | Dave
You have given all of us a gift, 13 years that is great.
Thanks
JOAN
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#17007 02-11-2005 11:47 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Welcome Dave
Trust the Americans to win the Boston Tea Party, and rear Brian Hill to give us this forum, so they can't be all bad LOL. Bet I take some stick for this post! ! ! !
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#17008 02-13-2005 09:35 AM | Joined: Jan 2005 Posts: 156 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Jan 2005 Posts: 156 | you are entitled to ur opinion helen. anyway ithink we all no its said in jest regards maz | | |
#17009 02-13-2005 10:17 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Hi Dave,
Welcome to the forum. It is always good to have along time survivor to help cheer the new patients through their treatment. Thanks for joining us.
Take care,
Eileen
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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#17010 02-13-2005 11:19 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Welcome to another Brit on the site... (even though I now live in Georgia ) 13 years ...you have given us a gift . The gift of hope .
Kudos to the good old National Health System
Thank You
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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