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#169570 08-19-2013 06:26 PM
Joined: Jul 2013
Posts: 17
JoelB Offline OP
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Posts: 17
I truly dislike regenerating nerves! At lease that's what Im thinking my aches and pains are... eek

Last edited by JoelB; 08-19-2013 06:41 PM.

DX-JUNE 22, 2012
STAGE..III
HNC--TONGUE
HPV--QUESTIONABLE
SURGERY...JULY 17TH, 2012
40% OF TONGUE REMOVED
FREE FLAP FROM MY LEFT FORE ARM (DIDN'T WORK)
RND
RT
XERSOTOMIA

VERY BLESSED

JoelB #169609 08-20-2013 05:34 PM
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Joined: Dec 2010
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Changes are that's what it is. I get a twinge now and then too, smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
JoelB #169661 08-21-2013 02:57 PM
Joined: Jul 2013
Posts: 17
JoelB Offline OP
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Posts: 17
Yeah, seems lately the twinges are more and more. Also shooting pain in my left ear too...Ugh....Im sure its not a recurrance as my cancer was on my tongue but it still worries me a little. Tylenol, Ibuprophen are my best friends now..lol...


DX-JUNE 22, 2012
STAGE..III
HNC--TONGUE
HPV--QUESTIONABLE
SURGERY...JULY 17TH, 2012
40% OF TONGUE REMOVED
FREE FLAP FROM MY LEFT FORE ARM (DIDN'T WORK)
RND
RT
XERSOTOMIA

VERY BLESSED

JoelB #169662 08-21-2013 03:04 PM
Joined: Mar 2013
Posts: 421
Likes: 1
Platinum Member (300+ posts)
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Joined: Mar 2013
Posts: 421
Likes: 1
I hear ya! Besides the general ache, I get shooting pains on the left side of my neck and shoulder where they did the neck dissection and in my feet from neuropathy. Not fun at all!
Yep... treatment... the gift that keeps on giving wink

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
JoelB #169758 08-23-2013 04:52 AM
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
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Joined: Jul 2012
Posts: 3,267
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Anytime there is pain, a recurrence, residual or new cancer, not that is, should be ruled out by the doctor. Sometimes it's by a visual, palpable or other diagnostic test. Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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