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#169514 08-18-2013 11:26 AM
Joined: Jun 2013
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Joined: Jun 2013
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Well, it feels like i am without control. i had an ent appt. he did endoscopic exam. he was quick, rude,&dismissive. i requested the biopsy for the lymph in back of neck he told me no. since then my throat looks even worse, like ut caught on fire. i always have thrush, burning toungue and i d k what to do. ir cost me 400 $ to be sent home with nasal spray.


Cynthia Erlsten
Joined: May 2013
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Such a shame when the ENT's don't take you seriously. I made a second appointment with an ENT at the U of MN, a cancer center, and as soon as he sat down he asked "If you would like we could cancel your appointment and save you some money." What, does he think I drove 3 hours to not have my appointment. He must not of even looked at my paperwork, I had wrote down the reason being there for the visit was because of a sore throat that has been going on for over months.

Very disappointed, no scope and left with him telling my it may be acid reflux but I find that hard to believe since I don't have heartburn or any other symptoms.

Keep pushing for answers and I hope you get them.

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Joined: Jul 2012
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Are you taking meds, anti-fungal, for the Thrush? That will also cause the side effects mentioned, and can go to the esophagus, elsewhere, if not treated properly. Also avoiding alcohol, sugar, fruits, processed foods, yeast products will help.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Aug 2013
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[b][/b]Yes Cynthia, I had the same misfortune. I went through my primary, ENT, and an Oral Surgeon all dismissed this little lesion under my tongue. It wasn't till a year and a half later when I was between a stage 1 and 2 that all of a sudden my primary took notice when it was painful to eat. I didn't mess around with anyone in my town anymore. I went to Moffitt Cancer Center which is 2 hours from me to have surgery and treatment. I was examined, was told a stage 2, surgery was scheduled, and my radiation starts on Sept. 3rd. smile


SCC T1NOMO May 2013 Age,61
SCC T2NOMO 06/2013
Partial glossectomy 07/03/2013
Radical Neck Dissection
Radiation starts Sept.3,2013
Denise KC

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