| | Joined: Aug 2013 Posts: 2 Member | OP  Member
Joined: Aug 2013 Posts: 2 | hi I am new to this. any advice welcome. I am in treatment and struggling it seems like if it can go wrong it has. not sure what to do next. I have 8 more radiation and 2 more chemo treatments to go. | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Not sure of the type of cancer other than SCC, Stage 4. One thing is to complete treatment, radiation, without any missed days, which has a negative impact. Chemo. Whatever type it is, can be reduced, Tx cut out, depending on side effects, lab work. Whatever hits you, can usually be managed by your doctors.
Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Aug 2012 Posts: 214 Likes: 1 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2012 Posts: 214 Likes: 1 | Ricky958,
Glad you found us, sorry your hear. To get the most out of OCF provide as much info as possible. Somebody here has probably gone thru what you are going thru right now and has seen it a done it. Having gone thru rads/chemo 9 mo ago, I can tell you that it will get a little worse before it gets better. For me I saw some improvement 5 week post treatment and really turned the corner 7 weeks post treatment. From there is gets better but ever so s...l...o...w.
Calories and water is top priority. You will hear it again and again. Eat, drink or use the PEG. One way or another you have to get as much food and water in you as possible.
Watch out for Thrush (burning tongue).
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ricky, welcome to OCF! You have found the best site for help both with moral support and correct medical info.
Right now you are at the point where most of us wanted to quit rads. It is such a rough road, which Im sure I dont have to tell you. The very best thing you can do to help yourself is to focus on things you have control over like your intake. If you push yourself to take in a minimum of 2500 calories and 48 oz of water every single day you will feel better. If you can get more in that will help you even more. Even 3500 daily calories isnt too much, either is 64 oz of water daily. So push yourself!!! Ask your doc for a prescription to get extra hydration in the chemo lab. When you walk out after getting hydrated, you will feel like a new man. Your intake is the key to getting thru this easier or struggling thru it. For at least the first year after rads you will need to keep up the 2500 calories and 48 oz of water daily to help get you back to your old self.
Please feel free to ask questions and we will help get your thru the next few weeks. Its ok to lean on us, we have been there and fully understand just how awful OC and its treatments are.
Best wishes!!!
PS.... I have sent you a private message (PM). Look towards the middle near the top of the page for where it says My Stuff. You should see a tiny flashing envelope, click on that and get the PM. Please take some time to review it with the link I sent. It will help you to make a signature and learn how to navigate the forum easier.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Ricky welcome, and more power to you.
Last edited by davidcpa; 08-15-2013 01:11 PM. Reason: deleted duplicate HPV post
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome Ricky to OCF.
There is a lot of knowledge here. As stated, provide more details and specifics and we can help quite a bit.
Treatment is very tough but you will make it and learning and applying information for this site will smooth out the ride. don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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