#16908 01-16-2005 03:42 PM | Joined: Jan 2005 Posts: 3 Member | OP  Member
Joined: Jan 2005 Posts: 3 | Hello, I am Paula, Wife of a cancer patient. He was diagnosed October 2001 at age 33 of Nasophargenal Cancer. It was in stage III. He went through chemo and radiation. It was a very difficult road for him. Then at the two year mark he developed double vision and we found out it had returned and spread to the clivis bone next to the brain stem. He did a CPK Radiosurgery. Then a few months later it came back. Then he did chemo for 5 months. It came back yet again. Now he is currently going through the 3rd round of radiation and chemo. We have two kids that we are shuffeling around family members. He has 4 days left and then its watch and wait. | | |
#16909 01-16-2005 04:54 PM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Paula, welcome to the site. Sorry you needed to find us. Also sorry you and your husband have been through such a tough time. And at such young ages. Hang in there and hopefully it will get better. Will keep you both and your family in my prayers.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16910 01-16-2005 05:28 PM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Welcome Paula
You will find support here from wonderful people who understand what you are going through. It must be so difficult for you all to endure another round of treatment. I am sending positive energy for a successful outcome this time.
You are in my thoughts, love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#16911 01-16-2005 06:06 PM | Joined: Jan 2005 Posts: 94 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2005 Posts: 94 | Hi, Paula. It sounds like you and your husband have been down an awfully hard road. Please know that everyone here is pulling for your husband and your entire family.
Ken
SCCA T2N1M0 diagnosed 11/02, radical neck dissection, 7 weeks radiation, 6 surgeries to deal with osteonecrosis, 10 weeks hyperbaric oxygen. "Live strong. Laugh often."
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#16912 01-17-2005 08:57 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Paula,
Welcome to the neighborhood. I am truly sorry to hear of all the challenges this horrible disease has brough to your family. Your husband is very fortunate to have you by his side through all of this. I am hoping that he has the best possible outcome this time. Like Ken says, we are surely pulling for you and your family!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#16913 01-17-2005 03:27 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Paula,
Reading your post made me feel like I haven't seen anything yet. After a year and one half I have had one reoccurance and chemo appears to holding back the beast for now.
Please know you can come here and ask any question you want to, someone will reply.
Please keep us posted as you endure another round of treatment with your husband and family.
I know there is a special place in heaven for caregivers. You sound like a great one.
Best Wishes for some good news, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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