| Joined: Feb 2013 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 53 | I am 6 months post radiation and doing great. I even survived the spicy food on our recent trip to Senegal!  However, I had my yearly physical on Monday and found out my cholesterol was 273. I am still only 95 pounds and have low blood pressure (I run 4-5 times per week). My diet has been interesting since losing my taste. I have always been a healthy eater, but post radiation have just tried to eat whatever went down well (like ice cream and pudding) to things I can begin to taste (like blue cheese and fresh berries). My doctor plans to recheck it in 3 months since I've never had this before, but I wondered if anyone else has had a sudden spike in cholesterol during their recovery? Thanks!
Teacher Karen DX: SCC of right maxillary alveolar ridge, 9/2010. Surgery 11/2010, removal of 4 teeth and gum. Surgery 11/2012, removal of 3 teeth and gum. IMRT 1/2013-2/2013 Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum. Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection. Cetuximab based chemoradiation 64.8 Gy to resection bed. Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection | | | | Joined: Apr 2011 Posts: 131 "OCF across the pond" Senior Member (100+ posts) | "OCF across the pond" Senior Member (100+ posts) Joined: Apr 2011 Posts: 131 | I found mine went up cos I had no taste except for sweet stuff and got a bit carried away with the eating! I still can't taste a lot but I have curbed the sweet eating and exercise 5 times a week. I'm two years out and it's back to normal....recovery is very up and down but you get there!
Jayne
Scc nasal cavity /hard palate Surgery removal of septum and roof of mouth 15/3/11 cl margins Rt and cisplatin 6 weeks starting 24/5/11 Obturator
Age 45
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Teach Karen,
I had just the opposite happen! I have cardio vascular disease and had high cholesterol and triglycerides since I can remember. Losing 65lbs from last Fall when all this started had one major benefit. My levels are completely normal and I'm even off my BP meds! While I have to be prudent concerning what I eat, I've been enjoying ice cream and things like bacon and sausage since I ended treatment with no effects on my blood work.
Definitely keep an eye on that! You don;t want to beat this beast and end up with heart issues.
Positive thoughts and prayers
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Karen, I ate anything in sight for the first year and my cholesterol spiked too. I had four cheese lasagna with sausage even. Then I went to work for a sausage company. It took years to get it back down. The LDL should be below 100 because of the damage to the carotids and potential problems from plaque there.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | My HDL went up to 202, which is not bad I guess, but was usually low at 150. My LDL is low at 28, and ratio is high at 8.1. Triglycerides are 251. I probably didn't fast for my blood test, as usual lol. I'm not worried, compared to everything else going on, and I don't know about all the cholesterol hype, which sounds like fuzzy math.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | My cholesterol was ok after all 3 rounds of OC.
This is one of those examples where everyone is different. Does a diet high in dairy have anything to do with the high cholesterol? ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | total cholesterol is not a terribly good measure of health as it is made up of HDL and LDL. HDL is good and LDL is bad.
If your total cholesterol has gone up because your HDL has gone up, this is not a problem and may even be a good thing if your LDL is still within range. The problem is if your LDL has also gone up. A more accurate measure is your ratio where a high HDL will offset increases in LDL. Ask your doctor what the individual measures are and if he or she thinks you have an issue. Triglygerides should also be measured and high readings are not good. However, a non-fasting reading is not terribly reliable and should only be cause for a re-test not concern.
Even so, this is something to keep in the back of your mind for when you are in a position to do something about it. The most important thing right now is to normalise your weight ensure you are getting adequate nutrition. You can worry about the balance later.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | Joined: Feb 2013 Posts: 53 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 53 | Thanks everyone for your input. I will be retested in 3 months and in the mean time, I am making sure I eat well, not just what I can taste! 
Teacher Karen DX: SCC of right maxillary alveolar ridge, 9/2010. Surgery 11/2010, removal of 4 teeth and gum. Surgery 11/2012, removal of 3 teeth and gum. IMRT 1/2013-2/2013 Surgery 1/2015 retromolar trigone resection; removal of 1 tooth and gum. Surgery 10/2015 left modified radical neck dissection, inferior parotidectomy, external carotid artery resection. Cetuximab based chemoradiation 64.8 Gy to resection bed. Surgery 6/19/2018 Right inferior maxillectomy, bilateral low palate resection | | |
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