#16880 01-15-2005 03:52 PM | Joined: Jan 2005 Posts: 4 Member | OP Member Joined: Jan 2005 Posts: 4 | Hi I'm scott, I just went through my first week of 5. I'm just worried about what to expect in my week off, and weeks ahead. I keep thinking of the worst, but trying to keep my head on stright.Ikeep telling myslf i;m going to be fine at the end of this. But on the other hand i'm scared to death. Thanks Scott | | |
#16881 01-15-2005 06:17 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Nov 2004 Posts: 104 | Hi Scott,
Welcome to the Forum. Glad You are here but sorry that You need to be. If You could give us some more information about what Your diagnosis and treatments are, then You will get some specific answers to Your questions. It is certainly most natural to be scared. This beast is a scarey disease. Do all You can to keep positive thoughts going. I send all of the positive vibes that I can Your way.
Peace Jack .......... Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#16882 01-16-2005 04:42 AM | Joined: Jul 2004 Posts: 188 Likes: 1 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jul 2004 Posts: 188 Likes: 1 | Hi Scott, This is Chuck. We met last week at U of Chicago. Glad to see you've found the forum. I hope your first week of Rads went well. There is a remarkable amount of information available here, and a very good search function. Many of your questions can be answered there. Add to that hundreds of caring individuals who have been where you're traveling, and I'm sure you'll find the OCF to be an invaluable resource. Again, welcome to the club no one wants to join. Feel free to call me if you have questions.
Good Health,
Chuck
SCC Stage IV right tonsil T3N3M0. Dx 08/03. Clinical Trial:8 weeks Taxol, Carboplatin then Hydrea, 5FU, IMRT x's 48, SND, Iressa x 2yrs. Now 20 years out and thriving. Dealing with a Prostate cancer diagnosis now. Add a Bladder cancer diagnosis to all the fun. It's always something "Adversity doesn't build character, it reveals it." | | |
#16883 01-16-2005 07:28 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2003 Posts: 928 | Hello Scott You are at the start of a very scarey journey, so being afraid is absolutely normal...we have all been there. Tell us a little more about your situation ,I guarantee one of us can relate , help with questions etc. Just know there is light at the end of this tunnel long though it may be! Hang in, do your research on the site, there is a ton of information on here and many willing ears to help you through. Take care Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#16884 01-16-2005 07:44 AM | Joined: Jan 2005 Posts: 56 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2005 Posts: 56 | Hi Scott: my husband Dan just completed his first wk of therapy too. 5 rad tx's and one chemo. He did pretty good until Friday night.....then had some vomiting. Saturday was miserable.....but he was able to sleep. He is very weak. He also developed thrush, which I found Friday evening....so another rx. What did you have? Rad and chemo? I hope it went well. Yes, it is very scary and hard to keep your chin up, but I KNOW that you and Dan can do this. Everyone here seems very helpful (I'm new here) so I think it is a good thing that we found a spot here. Take care and keep me posted on how you are doing. I know everyone is different, but it is nice to share experiences with someone that is at the beginning of the road too! Michelle
Michelle
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#16885 01-16-2005 10:21 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: Dec 2003 Posts: 528 | Dear Scott
Glad you have joined the forum, you will find wonderful support and understanding here.
It is difficult to remain positive when you are feeling mentally and physically exhausted - the treatment seems to be a very high mountain on day one. I tried to focus on one day at a time and congratulated myself on doing well.
For me, the more information I had, the lesser the fear.
Please let us know how you are progressing, Love and light from Helen
RHTonsil SCC Stage IV tx completed May 03
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#16886 01-16-2005 02:07 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Scott, I posted a calendar on my refrigerator around the second week of treatment and started living life one day at a time. Nothing mattered more then each day after treatment marking through another day of that calendar. I would count the days left on that calendar 10-15 times a day. I still have it. Routine kept me going and finally it was over. Good luck! Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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