#16877 01-15-2005 03:50 PM | Joined: Jan 2005 Posts: 4 Member | OP  Member
Joined: Jan 2005 Posts: 4 | Hi I'm scott, I just went through my first week of 5. I'm just worried about what to expect in my week off, and weeks ahead. I keep thinking of the worst, but trying to keep my head on stright.Ikeep telling myslf i;m going to be fine at the end of this. But on the other hand i'm scared to death.
Thanks Scott | | | 
#16878 01-16-2005 05:57 PM | Joined: Jan 2005 Posts: 94 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Jan 2005 Posts: 94 | Scott,
It's a pretty good bet that everybody here understands the fear. For me, it was much worse at the begining. Fortunately, it got better over time... I sincerely hope you are able to say the same.
Ken
SCCA T2N1M0 diagnosed 11/02, radical neck dissection, 7 weeks radiation, 6 surgeries to deal with osteonecrosis, 10 weeks hyperbaric oxygen. "Live strong. Laugh often."
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#16879 01-17-2005 09:01 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Scott,
Welcome to the neighborhood. Tell us some more about yourself. What type of cancer, staging, treatment plan, etc.?
Try to think ahead what life may be like without all you are going through right now. Think about the great food, the lack of doctors, hospitals, etc. Fear is certainly something we all experience through this. Many of us never get past the fear of the unknown but just learn to live for now, waiting for the next doctor appointment.
Remember, as of the day you were officially diagnosed, YOU ARE A SURVIVOR! Just like everyone that has traveled the road ahead of you, you are also a WARRIOR!
Best wishes!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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