| | Joined: Apr 2013 Posts: 92 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2013 Posts: 92 | I had my PET scan today and I got the all clear in the head and neck area. There was a small area that showed up in a completely unrelated area (rectal) My MO seemed pretty certain it was nothing to worry about BUT cancer being what it is she wants my gastroenterologist to check it out, waiting on that appt now.
Still dealing with the effects from treatment. I am back to using mainly my PEG due to very bad pain in my throat that started a few weeks ago, I am now being treated for a possible fungul infection, as long as it isn't a cancerous tumor causing the pain I feel like I can deal with and we will figure out what is going on soon.
Terrible fatigue, but my thyroid is still working well. Same ole answer "its gonna take a while"
My nausea has been horrible the last 4 nights, just like during chemo when I had morning sickness a lot now I am having night sickness. MO says its possible it was stress due to upcoming scan, if it persist we will be looking into that.
New pain meds today since the other ones weren't doing the job, oxycontin 20 mg twice a day, whew, after my first one I feel pretty loopy, like I am walking on a cloud the throat pain is still there but I can cope.
I feel great about the scan result (small twinge due to the other area). Feeling positive even tho I still have some issues things are soooooo much better than they were 8 weeks ago, if I never got any better than I am now I could live with it and be happy but I am still getting better everyday!
AGE 38 10-2012 thru 3-2012 swollen lymph node,painful jaw and ear,2 antibiotics,X-ray,CAT scan,needle biopsy,scope, no answers
3-4-13 tonsillectomy and selective neck dissection, DX R tonsil SCC,METS to 1 lymph node,BOT,HPV+, stage IV
TX 35 RAD,3 chemo cisplatin/Taxol started 4-8-13
rad end 5-29-13
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | [quote=rosymonroe]I
....if I never got any better than I am now I could live with it and be happy but I am still getting better everyday!
[/quote]
You are amazing Rosymonroe, what a great outlook! It gives me heart!
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Trilled to hear about the scan results. That for certain is the main event; other issues will resolve over time. don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Woot a clear scan is a good thing..! do follow up on the rectal stuff. Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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