#16871 01-14-2005 08:03 PM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Hi,
It would be great if we could chat live with people in here, instead of having to wait for posts. Is there a way you could add this on the web site?
Thank you for all your hard work on this site and we cant thank you enough!
God Bless
Thanks
Stephanie
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#16872 01-14-2005 09:16 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Stephany, If I can speak for Brian, this is not an option at this time. The cost of software and the added bandwidth (which also is expensive) is too much for the OCF to pay for. The amount of donations received will not yet support that function. Thanks for your input and if you are able, donate.
Over the last couple of years I have realized that Brian is too humble (my opinion). Were it not for his own substantial personal contributions, this site could not exist.
The best way we can show our appreciation for the endless hours he has put into this work would be to give financial support, then ask others to do the same.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#16873 01-15-2005 07:38 AM | Joined: Jan 2004 Posts: 134 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2004 Posts: 134 | Thank you Mark and Brian,
I will gladly contribute. How do I go about doing that? THis site is so fabulous and I appreciate everything you all have done to make this site and keep it up. Without it, I dont know what I would do. Thanks and God Bless
Stephanie
Stephany.Daughter of mother who passed away 3/26/05 from Recurrent Gum Squamous Cell Carcinoma. She had 3 surgeries, and 6 weeks radiation, and then passed due to infection. I miss her very much. She was 65 years young when she passed. Love you Mom!
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#16874 01-15-2005 08:32 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | There's nothing to stop interested members in sharing email addresses and signing up for ICQ or Instant Messenger. But speaking for myself, personally I already receive over a 100 emails a day as it is and I am just simply not available to engage in chat rooms at random due to other commitments (of course you can always check out). Like many board members here, I check the forum at various times during the day and respond as quickly as I can (assuming of course it is an area I am knowledgeable about). If it was a real serious problem, you should be heading to the ER anyway. I am happy to correspond with people personally and give them my phone number if they wish to talk.
Chiming in with Mark, Brian's rewards are going to be the treasures he is putting in the storehouse in heaven for the good works that he (and his wife) have been doing. He really needs our help to keep this unique forum going. In addition to personal donations, regular corporate donations would help help to stabilize things a bit. Talk to your human resources people.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#16875 01-17-2005 06:01 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Stephany, you are able to make a donation from the forum "home" page, one of the three big boxes that pops up. the same link is HERE: OCF donation page And thank you for the help!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#16876 01-18-2005 05:21 PM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 67 | Thank you guys for chiming in about the donations and the compliments on the labor of love that has become my life (there just isn't any time for anything else these days.) While there are many things on the list of additions that OCF would like to spend money on (Ingrid and I are just now putting up the funds for the printing of 250,000 three fold brochures for dental offices on
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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