| | Joined: Mar 2012 Posts: 58 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2012 Posts: 58 | I just need to vent for a sec. I'm really frustrated. Had an MRI done because I've been having chronic headaches/migraines with some jaw pain and my ENT said there was still exposed bone where my wisdom teeth were extracted on the lower mandible. It's been 8 months since my surgery and words like Osteomyelitis and Osteonecrosis are scaring the crap out of me. They finally got the results back and his assistant called today and said he wanted me to come in to discuss the results but of course he doesn't have an opening until Wednesday. So here I am, stuck driving myself crazy for 2 days until then. My ENT said if there wasn't an infection that he would take a skin graft from my cheek and cover the exposed bone and have me do another round of HBOT. If there is an infection there would be IV antibiotics and HBOT as well. I just want to know...
Female, 37 yrs old,Non-Smoker/Social Drinker, HPV-
T3 N1 M0 SCC Dx 11-10-11
11-23-11 Left Hemiglossectomy
11-30-11 Modified Radical Neck Dissection
01-25-12 Removed another spot on BOT, skin graft (left thigh)
38 RADS Tx Finished April 13, 2012
Fall 2014 - HBOT due to wisdom teeth extraction post radiation
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sorry you are made to wait for the full info. Gosh, dont the medical professionals understand how hard it is when they do that to a patient? It stinks!!!!
On the good side, HBO isnt a big deal and either is the IV antibiotics. You would get a picc line and do the meds thru that. Hopefully if you have to go that route, its a short term thing. I did HBO with the picc line antibiotics 3 times a day for about 8 months. Was a very long 8 months! Mine was from some major complications from having my jaw removed and the surgery failed, all kinds of unusual issues. You situation sounds like it shouldnt be too bad, just time consuming.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2012 Posts: 58 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2012 Posts: 58 | It seems it is Osteomyelitis in the bone...ENT has ordered a Bone SPECT. I've been battling these awful headaches and migraines and then the jaw pain came along and that was the only way we knew to even look, at any rate, my ENT thinks this could have been the cause of the headaches. 4 weeks with a PICC, every 6 hours and I'm assuming 30 HBOT treatments. We shall see...
Female, 37 yrs old,Non-Smoker/Social Drinker, HPV-
T3 N1 M0 SCC Dx 11-10-11
11-23-11 Left Hemiglossectomy
11-30-11 Modified Radical Neck Dissection
01-25-12 Removed another spot on BOT, skin graft (left thigh)
38 RADS Tx Finished April 13, 2012
Fall 2014 - HBOT due to wisdom teeth extraction post radiation
| | | | | Joined: Mar 2012 Posts: 58 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Mar 2012 Posts: 58 | Christine - Will I have to be admitted to have a PICC inserted?
Female, 37 yrs old,Non-Smoker/Social Drinker, HPV-
T3 N1 M0 SCC Dx 11-10-11
11-23-11 Left Hemiglossectomy
11-30-11 Modified Radical Neck Dissection
01-25-12 Removed another spot on BOT, skin graft (left thigh)
38 RADS Tx Finished April 13, 2012
Fall 2014 - HBOT due to wisdom teeth extraction post radiation
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