| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Speak up and talk to your doc about your ears. You do NOT want another dose of cisplatin as it can do permanent damage. This cant be fixed either, so talk to your doc right away. Ringing is the first sign of a potential problem.
Begin rinsing your mouth at least 4 times per day with 16 of warm water, 2 tsp baking soda and 2 tsp salt. If it burns too much try to cut back the salt. If you must, omit the salt. But remember salt water helps with heeling so try your best to keep some salt in the mixture. This will help to neutralize the ph balance in your mouth and will help the sores. Also ask for a prescription for magic mouthwash to swish around for about 20 second and spit out. It will help numb your mouth so you can eat easier. If you arent on pain meds, ask for something to help you with the mouth sores. Hurting wont help make it easier, it will only make things much harder than it has to be.
Its seems like its a very long road to being well. It will be full of ups and downs, unfortunately alot of downs. Keep going no matter what, even if you want to quit you must finish your treatments. It will unfortunately get progressively harder as time goes by. Even the first 2 or 3 weeks after finishing are difficult. But hang in there and stick with us and we will help get you thru this. We have been where you are and know what its like every horrible minute of it, we lived it. If you need to vent or ask questions, we will help you with both support and info.
Best wishes with everything!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Ditto what the tome said! Good luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi Meli,
When you have your appointment with your chemo oncologist at Greenlane you must mention the ringing in the ears. I'm sure they will switch the chemo drug.
Keep rinsing with the salt and soda bic mouthwash frequently. I'm sure Bob the dentist will guide you when you see him next Wednesday.
Also speak up when you see your Radiation oncologist this coming week about the pain. You can also mention it to the radiation techs who will ensure you get seen and given stronger pain meds straight away.
It is also very important that you continue to swallow every day to keep those muscles working. I'm sure the SLTs have reminded you often about this - they are fantastic ladies. Do you have a PEG?
Take it easy and be kind to yourself,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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