We're now part way through week 2 and things have started to get sore already which seems to have surprised everyone (I've only had 7 RT). Mouth sores started popping up yesterday around the edge of my tongue and some on my cheeks as well. It's 5am now and a sore throat woke me up and I couldn't get back to sleep so I've gotten up for a while. It doesn't help that I've caught my sons chesty cough and so have a sore throat from that probably too, along with a sore chest and sore muscles from coughing.

Had the oral health clinic today and they gave me some Chlorhexidine antiseptic mouth wash, some difflam mouth wash and a humidifier to start using at home. Used the chlor mouth wash last night before bed - man that stuff smarts!

I've also started getting ringing in my ears and am scheduled for another hearing test today to check for an damage. I'm on the big 3-weekly bag of cisplatin and I think that you can change to weekly smaller doses to help that. Is that right or do you have to change the chemo drug altogether?

Other than those minor things everything else is fine. I'm still working (I own my own business so I've got great flexibility but lots to keep an eye on) but have also started to feel quite tired again after just recovering from chemo round 1. How did tiredness affect you all?

The cough and the sores are both making me feel a little miserable already. I feel like a big wimp.

Thanks for tolerating my wining.


2013 - 39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished 30 rads & chemo (cisplatin) stopped after 1 round due to hearing loss
May 2015 - left supraclavicular swollen lymph node & area - CT planned 9 May