Previous Thread
Next Thread
Print Thread
#167596 07-09-2013 05:35 AM
Joined: May 2013
Posts: 24
AWW Offline OP
Member
OP Offline
Member

Joined: May 2013
Posts: 24
Hi all,

My brother is in week four of treatment and we are trying to keep his calories up through a PEG. He is taking four to five ISO's daily at 375 calories each. Our nutritionist told us to add BeniCalorie as a supplement along with it, which adds another 330 calories each time (so over 700 calories with each meal). The challenge is that the BeneCalorie doesnt mix well with the ISO (it is very oily and thick). Has anyone found a powder or better low volume liquid that works for nothing but some calorie supplement?

Thanks


AWW, Brother of Dave, 60
Pre-canc 10 years ago
Biopsy Dentist 10/12
Stage 2 SCC 2.5cm
no action
5/13 to DanaFarber
Examined by Surgeon, MO, RO
PET, CAT
Stage T4, 4.5cm, no METs, or lymph nds
Started treatment 6/17 - RT 5x/wk, Csptn 1/wk, for 7 wks - will end 8/5
PEG since his first week.
Treatment ended 8/5
Scans scheduled for 10/30, with FU appointment 11/6
11/1 - Treatments didn;t work. Tumor continues to grow.
AWW #167600 07-09-2013 10:31 AM
Joined: Jun 2013
Posts: 49
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Jun 2013
Posts: 49
My husband, Richard is 4 weeks into chemo and 10 days into radiation. We just started the PEG this past Saturday, and his dietician has him on Nutrin 2.0 at 500 calories per 8.45 oz box. She has calculated that because he is a tall, lean man (6'2", starting out at 226 lbs at the beginning of treatment, now at 219 lbs), she recommended 5 boxes per day - 2,500 total calories.
Hope this helps.
Barbara


65 yr old male in great health other than C. 5/1/13 lump discovered, 5/15 Biopsy, 5/29 PET/CAT, Diag: SCC HPV+ rt tonsil, 1 node, Stage III T1-2 N1, 6/10 PEG, 06/17 Chemo, 6/24 Radiation, 7/6 100% PEG, 8/14 Done with treatment, 11/6 follow-up PET, 11/8 NED, 11/13 PEG removed!
AWW #167603 07-09-2013 11:31 AM
Joined: May 2013
Posts: 24
AWW Offline OP
Member
OP Offline
Member

Joined: May 2013
Posts: 24
Thanks, I will look at the Nutrin. Best of luck with your husband!


AWW, Brother of Dave, 60
Pre-canc 10 years ago
Biopsy Dentist 10/12
Stage 2 SCC 2.5cm
no action
5/13 to DanaFarber
Examined by Surgeon, MO, RO
PET, CAT
Stage T4, 4.5cm, no METs, or lymph nds
Started treatment 6/17 - RT 5x/wk, Csptn 1/wk, for 7 wks - will end 8/5
PEG since his first week.
Treatment ended 8/5
Scans scheduled for 10/30, with FU appointment 11/6
11/1 - Treatments didn;t work. Tumor continues to grow.
AWW #167607 07-09-2013 02:51 PM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Ive used many different formulas over the years. Seems like the higher the calories, the thicker it is and the higher the likelihood of discomfort. Nutren comes in several strengths, I currently used the 375 calorie type. The first formula which was high calorie I found success with was called 2-Cal, it has 560 calories per can.

You can talk to the nutritionist about switching formulas. But before you do that, try watering it down. Adding a can or 2 of water usually does the trick. Another common tip for helping to handle the formula is to slow down the feeding. Ask for a prescription for a feeding pump that can run overnight while your patient sleeps. They will need to be propped up on a couple extra pillows or it can also be used while watching tv in a recliner. By running a feeding pump overnight you can add an extra 1000 ml of fluid easily every night.

Be careful about switching formulas, not all are covered by all insurance companies.

Last edited by ChristineB; 07-09-2013 02:54 PM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
AWW #167611 07-09-2013 03:25 PM
Joined: Jan 2013
Posts: 1,292
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,292
Likes: 1
Hi,
There are some mechanical limitations at work. Protein and carbohydrate each offer 4 calories per gram. Both have about the same density as far as I can see when dealing with whey protein isolate powder (83% pure) and pure carbohydrate powder such as malodextrine. Fat has more than double the calories at 9 per gram but surely more dense.

so drinking pure olive oil gets you the most calories per volume but likely to create some digestion issues. On the other end just simple protein powder mixed into liquid with milk or water offers the ability to adjust the caloric density to what works best for your situation. don



Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
AWW #167615 07-09-2013 03:57 PM
Joined: May 2013
Posts: 24
AWW Offline OP
Member
OP Offline
Member

Joined: May 2013
Posts: 24
Thanks. I was afraid there were limited choices. Maybe the benecalorie is the best option - with a lot of water. So far, he has been good with getting food in, so as they taught me way back - if it ain't broke, don't fix it.


AWW, Brother of Dave, 60
Pre-canc 10 years ago
Biopsy Dentist 10/12
Stage 2 SCC 2.5cm
no action
5/13 to DanaFarber
Examined by Surgeon, MO, RO
PET, CAT
Stage T4, 4.5cm, no METs, or lymph nds
Started treatment 6/17 - RT 5x/wk, Csptn 1/wk, for 7 wks - will end 8/5
PEG since his first week.
Treatment ended 8/5
Scans scheduled for 10/30, with FU appointment 11/6
11/1 - Treatments didn;t work. Tumor continues to grow.
AWW #167616 07-09-2013 04:25 PM
Joined: Jul 2012
Posts: 3,267
Likes: 4
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 4
I have used "Unjury" who make medical quality protein. They mix well, tastes good with several flavored, unflavored, and even have a chicken flavored protein stock base. I stay away from high protein bodybuilding drinks with too much protein, and who know what they put in them. I also used K-PAX, protein blend, immune booster, which is 100% rice protein, made for medical conditions like cancer, others as well.

To increase calories, you can add any healthy vegetable oil to anything, since each Tbs has 120 calories, 14g of fat.

Too much protein can cause a hardship on the organs, especially the kidneys, which can cause dehydration, due to the need to eliminate ketones in the urine. It's adequate protein, what that is differs for everyone based on height, weight, activity level, and medical conditions, and who you talk with. Check with your healthcare team before adding any supplement.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






AWW #167629 07-10-2013 05:39 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Never had a PEG but I did find that drinking what's now called Boost VHC (very High Calories) helped me a lot as this small 8 oz can had/has a whopping 560 cals. Please make sure he continues to use his swallowing muscles every day even with the PEG as some link this non activity to swallowing problems post Tx.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
AWW #167726 07-11-2013 07:10 PM
Joined: May 2013
Posts: 24
AWW Offline OP
Member
OP Offline
Member

Joined: May 2013
Posts: 24
You all rock. Thanks community!


AWW, Brother of Dave, 60
Pre-canc 10 years ago
Biopsy Dentist 10/12
Stage 2 SCC 2.5cm
no action
5/13 to DanaFarber
Examined by Surgeon, MO, RO
PET, CAT
Stage T4, 4.5cm, no METs, or lymph nds
Started treatment 6/17 - RT 5x/wk, Csptn 1/wk, for 7 wks - will end 8/5
PEG since his first week.
Treatment ended 8/5
Scans scheduled for 10/30, with FU appointment 11/6
11/1 - Treatments didn;t work. Tumor continues to grow.

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
RiverChuck, Txteacher, UTFN57, Lexlie, saskychris
13,185 Registered Users
Forum Statistics
Forums23
Topics18,199
Posts197,006
Members13,185
Most Online614
Jul 29th, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5