| | Joined: Apr 2013 Posts: 21 Member | OP  Member
Joined: Apr 2013 Posts: 21 | First I would like to say thanks for this forum lots of good info.
My question is I am 4 weeks out of treatment and the past week I am noticing a swollen lymph node on the right side same as treatment side. I don't see the Doctor until August for my first scan. Should I be concerned and get seen quicker or is my concern just part of being a survivor.
Thanks,
Steve
T1 N2b M0 IVa HPV+ right tonsil 58 non smoker
Noticed enlarged lymph node right side 2-2013
CT scan 2-18-2013, FNA 2-21-2013 Neg,
Excised 1 node and bio tonsil SCC 3-19-2013.
MD Anderson 4-1-2013
8 teeth removed 4-12-2013
Start treat 4-29-2013
66 GY IMRT
Comp treat 6-7-2013
8-15-2013 NED
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Don't wait see him this week, ASAP - it could be a sign of infection but you don't want to take any chances... Best of luck!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | Welcome Steve,
ditto Cheryl. Typically you would see your MO/RO about where you are half way to first scan anyway. I'm surprised you seem to not have any visit scheduled for that entire 8 week post period. Give them a call Monday and get in there. Better safe than sorry and as I said they should have scheduled a check up anyway about now. don
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 8 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Welcome Steve,I would agree with both Don and Cheryl. Call the doctor and explain what the problem is and ask to see him. Don't be intimidated by the thought that the doctor might think you are overreacting.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Apr 2013 Posts: 21 Member | | OP Member
Joined: Apr 2013 Posts: 21 | Thanks for your reply Cheryld, Don and Gloria. I am making calls this morning to get an appointment. I thought it was odd that it was so long before the next appointment. During treatment you see the Dr. once a week but my worst time was the 2 to 3 weeks after treatment.
T1 N2b M0 IVa HPV+ right tonsil 58 non smoker
Noticed enlarged lymph node right side 2-2013
CT scan 2-18-2013, FNA 2-21-2013 Neg,
Excised 1 node and bio tonsil SCC 3-19-2013.
MD Anderson 4-1-2013
8 teeth removed 4-12-2013
Start treat 4-29-2013
66 GY IMRT
Comp treat 6-7-2013
8-15-2013 NED
| | | | | Joined: Oct 2012 Posts: 1,275 Likes: 8 Assistant Admin Patient Advocate (1000+ posts) | | Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | I guess it depends on the health care system that you are in. John's first appointment after treatment was seven weeks. He had his first CT scan after twelve weeks. We were told also that we could call the doctor and ask to see him if anything should concern us. Nevertheless, it was a long wait, for sure.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: May 2013 Posts: 63 "OCF Kiwi Down Under" Supporting Member (50+ posts) | | "OCF Kiwi Down Under" Supporting Member (50+ posts)
Joined: May 2013 Posts: 63 | Good luck. Definitely get in sooner.
2013 - 39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished 30 rads & chemo (cisplatin) stopped after 1 round due to hearing loss
May 2015 - left supraclavicular swollen lymph node & area - CT planned 9 May
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | As everyone said, see the doctor sooner. Radiation continues to work just as long as your treatment lasted, 6 weeks. It could be a necrotic lymph node that has yet to subside. I had swelling of a cancerous node long after treatment that was slowly getting smaller, and had to wait 5 months to get a PET/CT. Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Apr 2013 Posts: 21 Member | | OP Member
Joined: Apr 2013 Posts: 21 | Good News, I saw my RO today about what I thought was an enlarged lymph node. The RO said it was nothing to worry about and appeared to be fluid build up where the tongue attaches in the neck. The swelling had actually gone down some since I had become concerned. It's amazing what a mood changer a little good news can be!
T1 N2b M0 IVa HPV+ right tonsil 58 non smoker
Noticed enlarged lymph node right side 2-2013
CT scan 2-18-2013, FNA 2-21-2013 Neg,
Excised 1 node and bio tonsil SCC 3-19-2013.
MD Anderson 4-1-2013
8 teeth removed 4-12-2013
Start treat 4-29-2013
66 GY IMRT
Comp treat 6-7-2013
8-15-2013 NED
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Glad to hear your news, Steve!
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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