#16751 12-28-2004 09:42 PM | Joined: Dec 2004 Posts: 18 Member | OP  Member
Joined: Dec 2004 Posts: 18 | Hi, this is a fantastic web site, for sufferors and supporters that i have have yet found for oral cancer, My Husband is an oral cancer patient he was diagnosed with tounge cancer plus 3 lymphnodes After surgery, neck dissection and radiation has now got a secondary tumour also in mouth less than a year after, hard to know what will happen, interested in different treatment options,
charm
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#16752 12-29-2004 08:27 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Charm
Sorry you had to join us but welcome, there is a fantastic amount of information contained in this site, please use the search facilty to gather information and please then ask questions we will help if we can. Prayer and good vibes..
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#16753 12-29-2004 10:57 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Hello Charm
Welcome to another person from my part of the world. Sorry your husband has had such a hard time. You have found the place where you will find wonderful support.
I can't help with your specific question but send love from Helen
RHTonsil SCC Stage IV tx completed May 03
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#16754 12-29-2004 08:57 PM | Joined: Dec 2004 Posts: 18 Member | | OP Member
Joined: Dec 2004 Posts: 18 | thanks helen and aussieh, my husband is back in hospital at the moment but I will show him this site when he is discharged and I am sure he will find it a great support as well, Happy New Year everyone
charm
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#16755 12-30-2004 01:39 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Charm, welcome to the site. Sorry you had to find us, but we will help as much as possible. Where is your husband's secondary tumor located? Is it in the same place as the first or a whole new location? Did he have IMRT rad? How many treatments? Has a biopsy been performed on the secondary site or is it just "suspicious" activity? We can help you more if we have more information. Meanwhile, will pray for comfort for you and your husband and family.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#16756 12-30-2004 07:01 AM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Hi Charm,
Welcome to OCF, sorry you have had to find us and that your husband is having to battle this beast.
Sending positive vibes out across the Pacific to both of You. Keep us up to date on how your husband is doing.
Peace
Jack
..........
Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV,
Srgry 1/23/97 tonsillectomy & mod radical neck dissection,
Radiation 35 trtmnts both sides | | |
#16757 12-31-2004 11:54 AM | Joined: Dec 2004 Posts: 18 Member | | OP Member
Joined: Dec 2004 Posts: 18 | my husband had an mri scan and biopsy which showed a recurrence of a tumour also in tounge but larger and deeper, not visable in mouth, he has already had rad, and toungue flap, is on intrevenous fluids at mo to keep his mouth sterile, to heal biopsy, will find out later in month what they will do next, am wondering what that might be?
good wishes to you all, charm
charm
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#16758 12-31-2004 12:45 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hello Charm,
I wish I could say something that would make both you and your husband feel better. Having a reoccurance is something many of us face. It's a real downer. Sending prayers your way and hope there is something they can do for him.
Love, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#16759 01-01-2005 10:06 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Charm, I am sorry to hear of your husband's recurrance. I will be praying for you both, God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#16760 01-01-2005 10:39 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Charm
I sorry that you are both facing this, how long have you to wait to hear what is happening, I don't suppose the holiday period is helping, but you are both in my prayers, you are quite welcome to e-mail me if you need to vent about anything, my e-mail address is in my profile..
Sunshine... love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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