| | Joined: Jun 2013 Posts: 10 Member | OP  Member
Joined: Jun 2013 Posts: 10 | Hi friends,
My motherinlaw (age 54, non smoker, resides in India) was diagnosed with Oral Cancer in Sep' 2012;
Sep'2012: the stage was T2N0M0;
CT 6/13 shows the following:
1.erosion visualized in right superior alveolus, anterior, posterolateral wall of right maxillary sinus, right zygomatic bone, right zygomatic arch, posterolateral wall of right orbit, right greater wing of sphenoid and adjacent right frontal bone.
2. Heterogenously enhancing soft tissue swelling seen in the right premaxillary region, right periorbital and right infratemporal fossa. Extension of the lession into the extraconal space visualized on the righ sie (lateral and inferior aspect) 3.Soft tissue component also visaualized in the right maxillary sinus
4. mild proptoisof rright eyeball visulized
5. minimal extradural component visualized in the anterior pole of right temporal fossa.
6. mild dural enhancement also visualized in the right fronto-temporal region.
7. No e/o parenchymal enhancement in brain.
Dr says that it is in advanced stage & they cant go for surgery & . They commented that they cant do anything & she is going to be in palliative care. We are going 4 3rd opinion now.
We are really worried considering her age; We would appreciate any advice to guide us to proper direction are appreciated.
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Hi there, and I'm so sorry about your mother-in-law's situation. I hope the new doc offers some good options for her.
Lynn
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry your mother is going thru a recurrence! Its never easy going thru a cancer diagnosis but I think getting a recurrence diagnosis is even harder for many to accept. A recurrence can be fast moving so time is of the essence in finding a facility to help your mother.
If your mother was in the US I would advise to take her to one of the country's tops comprehensive cancer centers. Im sorry but I do not know what is offered in other countries. The best thing to do is seek out the biggest and best oncology department at a major treatment center. Look for a place where they us a team based approach and follow guidelines for treatment.
Wishing you both all the very best.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | Hi, from the CT report it does seem to be an advanced stage and surgery is no option.
Recurrence are difficult to deal with and our country does not have access to various trials, which might help. Kindly let us know where your mother-in-law had your previous treatment and what was the course of treatment.
Discuss with doctors regarding combination chemotherapy (Cis+5FU+Taxane) and targeted therapy.
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Why are they saying that concurrent radiation and chemo are out? Is it because of the proximity to the eyes?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I didn't see any indication of whether chemo and rads was ruled out other than there is nothing more they can do. Personally I would get to a big cancer hospital if you can, and get another opinion from a good dr well versed in head and neck cancer. My suggestion would be possibly hit it with a combination of chemos in hopes of shrinking it to an operational size, or rads and chemo if possible. She is very young - god bless and let us know what happens.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2013 Posts: 10 Member | | OP Member
Joined: Jun 2013 Posts: 10 | Hi Christine,
Please let me know if you know the best hospital in US and i could have discussion with my family members to look at it.
Thanks for your support | | | | | Joined: Jun 2013 Posts: 10 Member | | OP Member
Joined: Jun 2013 Posts: 10 | Hi David,
I presume that due to extra dural involvement and dural enhancement. They are going for 3rd opinion with chief head of medical oncology & oncology surgeon.
I am hoping to get some guidelines tomorrow. i ll post it as soon as i can.
Thanks for your support.
Paranee | | | | | Joined: Jun 2013 Posts: 10 Member | | OP Member
Joined: Jun 2013 Posts: 10 | Hi Eshwar,
She went to radiation & chemotherapy from Sep'12 in Madras/chennai & she took following medications:
CISPLATIN INJ 50mg KEMOPLAT (FRESENIUS KABI) - 2 Quantity
PALANOSETRON INJ 0.25mg PALZEN (Dr.rEDDY'S) - 1 Quantity
APREPITANT CAP 125/80 mg APRISET ( CYTOMED) - Capsule.
I think the radiation rate: 7800.
She went for review quite often; attended by surgeon but he said that he cant go for surgery without taking any CT/MRI/PET. They prescribed morphine.
Then we went for another opinion with CT taken in 6/13 showed dural enhancement, extra dural matter visualized, right orbit visualized & bony erosions (pls refer findings of recent CT in my first post).
Eshwar, is any best hospital in North as my colleague mentioned about tata memorial hospital in mumbai. Please let me know if you have any best hospitals .
We are going for another opinion in Madras tomorrow. hope, we get some solution / guidelines re: therapy.
Thanks for your support.
Paranee | | | | | Joined: Jun 2013 Posts: 10 Member | | OP Member
Joined: Jun 2013 Posts: 10 | Eshwar, pls let me know what is 5FU? | | |
| Forums23 Topics18,265 Posts197,179 Members13,362 | | Most Online1,788
Jan 23rd, 2025 | | |
|
