| | Joined: Feb 2013 Posts: 20 Member | OP  Member
Joined: Feb 2013 Posts: 20 | Hey. Haven't posted in a while. Feeling a little blue but that's another forum! I haven't eaten since first week of may. No PEG tube. My dr said they only put them in as last resort as they feel ultimately they do more harm than good. I have lost about 50 pounds. I was overweight to start with so it's not as bad as it seems. My question is this. I have got to start eating. I have some magic mouthwash and feel like I can swallow but there is fear of burning and choking. Does anyone have any good ideas about what to try first?
2/13/13 Dx scc anterior 2/3 of ventral surface of tongue
3/8/2013 partial glossectomy neck dissection at Wake Forest
1 out of 61 nodes had cancer but was encapsulated
4/22/13 rad tx started; 30 sessions over 6 weeks at Wake Forest
6/4/13 finished rad tx
9/5/13 PET scan NED
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Hey, I started with scrambled eggs and drank 2500 cals of Ensure and after a week just forced myself to eat real food!!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Feb 2013 Posts: 20 Member | | OP Member
Joined: Feb 2013 Posts: 20 | Thank you bob. Did u have the psychological fears I'm having? Don't know if this is normal.
2/13/13 Dx scc anterior 2/3 of ventral surface of tongue
3/8/2013 partial glossectomy neck dissection at Wake Forest
1 out of 61 nodes had cancer but was encapsulated
4/22/13 rad tx started; 30 sessions over 6 weeks at Wake Forest
6/4/13 finished rad tx
9/5/13 PET scan NED
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Hi, Monica
Like Bob mentioned, eggs (use lots of butter) are a good first choice. Have a big glass of water near to hand. Angel hair pasta with EVOO will slide right down, too. Baby steps first!
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Soupy bowl of Cream of wheat with butter, milk, sugar, if you can tolerate, you can add canned peaches later on as you progress. Can you drink a protein supplement like ensure, glucerna or boost. I could not tolerate scrambled eggs for a while, it was a texture thing, same as bread. Anorexia, starvation is a psychological thing. Maybe see counselor or someone for eating disorders.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Feb 2013 Posts: 20 Member | | OP Member
Joined: Feb 2013 Posts: 20 |
2/13/13 Dx scc anterior 2/3 of ventral surface of tongue
3/8/2013 partial glossectomy neck dissection at Wake Forest
1 out of 61 nodes had cancer but was encapsulated
4/22/13 rad tx started; 30 sessions over 6 weeks at Wake Forest
6/4/13 finished rad tx
9/5/13 PET scan NED
| | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Mar 2013 Posts: 421 Likes: 1 | My very first solid food after PEG feeding for 4 weeks was a soft scrambled egg. I was fortunate that I retained my taste so it was wonderful. Water was needed to wash it down but it was quite good  Just remember.. "chew, chew, chew, chew... Sip and swallow, sip and swallow". Once you get on the train, it becomes easier... Positive thoughts and prayers "T"
57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
| | | | | Joined: Sep 2011 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2011 Posts: 61 | Poached eggs, those packs of Knorr Noodles and Sauce, vanila ice cream, cream of chicken soup. Those were some of the things I could eat during and after treatment.
Do not go gentle into that good night. Rage, rage against the dying of the light.
31 @ Dx SCC of tongue right side May 27, 2011, no tobacco, light drink
Partial gloss. and ND June 2011 - 2 jaw nodes positive ("encapsulated")
33 rads ended 10/21/11.
Dx Non small cell lung cancer 05/18/15
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sorry to hear you havent been feeling the best. Here is a list of easier to eat foods. The foods on this list have a smoother texture and tend to be on the bland side to make it easier to relearn how to eat again. Canned peaches were one of my staples. They slide right down easily. Good luck!!! Easy to Eat Food List
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Feb 2013 Posts: 20 Member | | OP Member
Joined: Feb 2013 Posts: 20 | Thank you for the link Christine!
2/13/13 Dx scc anterior 2/3 of ventral surface of tongue
3/8/2013 partial glossectomy neck dissection at Wake Forest
1 out of 61 nodes had cancer but was encapsulated
4/22/13 rad tx started; 30 sessions over 6 weeks at Wake Forest
6/4/13 finished rad tx
9/5/13 PET scan NED
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