| Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | OP "OCF across the pond" Contributing Member (25+ posts) Joined: May 2013 Posts: 44 | Hey guys,
I have my dentist appointment in couple of hours so I'll have to see what he says about it too, it's not gone down at all so that's not exactly comforting; but at least he is actually looking at it and not just passing it off as nothing like most if the doctors I've seen have. They are passing my sore throat off as anxiety too, but I do not agree with that at all as it feels different from any sore throat I've ever had and occasionally makes me sound a bit croaky.
I just want a diagnosis ASAP, all this worrying is driving me mad. Not that my mind will be at very ease if I get bad results of course.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | OP "OCF across the pond" Contributing Member (25+ posts) Joined: May 2013 Posts: 44 | So I saw my dentist today. He said he doesn't think it's anything to be worried about still, but said as he is not a specialist he can't say 100%. He said if I wanted I could have a referal to a specialist, so of course I agreed and he said that he'll right a letter and send it off, but is not sure how long it will take to get an appoinment; between 2 weeks to a month, it's not straight away but it's something. That along with the other appoinment I have, hopefully I can get a diagnosis one way or the other soon.
Last edited by Jade5792; 06-11-2013 05:36 AM.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | No news is good news! Sorry it's so difficult for you to get a referral to a specialist. I'm glad I don't have to do that, and would be anxious too.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | OP "OCF across the pond" Contributing Member (25+ posts) Joined: May 2013 Posts: 44 | It's certainly a pain, but at least we are getting somewhere now; even if it has taken longer than it really should have.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Jade,
Glad to hear that great news from the dentist. With all due respect, I'm not doubting you are experiencing symptoms that concern you, but several doctors and now a dentist found nothing that concerned them. Could it possibly be that you're suffering from a little bit of health anxiety? In the mean time, while you're waiting for the system to authorize appointments, perhaps a conversation with a counselor concerning your fears would be beneficial.
Positive thoughts and prayers
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | OP "OCF across the pond" Contributing Member (25+ posts) Joined: May 2013 Posts: 44 | I think you may be into something with the health anxiety, though I do genuinely believe my physical symptoms are real as they are why I started worrying, I do think they feel worse then they may actually be due to me constantly focusing on it and worrying.
I have been to quite a few doctors now (6 to be exact), that's quite a few and I've had mixed reviews from all of them, with the majority thinking its nothing to be too worried about and the 1 telling me that it's been there for a while and should be worried. For some reason it's just easier to focus on the negatives, which is not a good thing at all.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | Joined: May 2013 Posts: 69 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: May 2013 Posts: 69 | Jade
I hope you get it looked at soon as you need to put your mind to rest. I had my biopsy and it proved negative for cancer, no one was surprised but me as i too focussed on the negative. Now i am stressed about the follow up as i have a small bump in my gum thats not even visible and my gp thinks its nothing, a gum boil or something similar. But i am still stressing to some extent. I do btw have terrible health anxiety which id never had until last year.
Hopefully you can get it seen by ent or a maxillofacial surgeon. If you do find out that you have other fears about other illnesses in the future make sure you get some counselling etc ad heath anxiety is terrible, it takes over, and makes life frightening and unnecessarily unhappy which it shouldnt be.
Hope you get peace of mind soon jade xxx | | | | Joined: May 2013 Posts: 44 "OCF across the pond" Contributing Member (25+ posts) | OP "OCF across the pond" Contributing Member (25+ posts) Joined: May 2013 Posts: 44 | Hey Tamsin
I think I said it before but I'm very glad you have the all clear. I have a bump in my gum as well in the left hand side, you cannot see it at all. But I think it's left over from a bad infection I had on the left side of my mouth a couple of months ago , that I had a root canal for.
Well my appoinment at the hospital is in the maxillofacial department, I'm just worried I won't be able to get it biopsied as you cannot physically see the swelling (though the right side of my tongue is raised higher than the left slightly, and I don't know if it's normal for me or not), and can only really feel it if my tongue is in its normal position, or stuck out straight not to the opposite side of my mouth.
Since taking the meds the doctor gave me for acid reflux (omeprazole) my throat feels a lot better, not completely as the sore throat and feeling of something stuck is still there but is much lessened. Well the sore throat is anyway, the stuck feeling is still pretty noticeable.
Last edited by Jade5792; 06-13-2013 03:33 AM.
No diagnosis as of yet. 20 year old female, do not smoke or chew, very very rarely drink and then only in extreme moderation, HPV-.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I hope this doesn't seem harsh but if you know you have health anxiety as you say, why would you hang out in an oral cancer forum with thousands that have had chemo, radiation and/or surgery for mostly advanced staged? I liken it to an alcoholic hanging out in front of the liquor store all day or someone on a diet opening the fridge every hour to see what is in there. Even statements of being the only one surprised with the negative biopsy indicates a different thing to pursue because it isn't oral cancer.
Get on with life. Find a positive, enriching forum to feed your interests. Exercise. Eat well. You should have a new lease on life but you still fear cancer as bad as a survivor. Stay away from the negative!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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