| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Linda is not expected to wake up today so I'm taking time to do some necessary things that have been put off. I'll take your kind words and prayers to her when she does wake up. Got a little more detail today. It had spread from ovary to ovum and intestine. They removed it but did not get clean margins. She has enough of a fight ahead just to recover from what has already happened, and then she still has the cancer to deal with. I feel like we're stuck in quicksand. I'm not a religious person and don't use the word prayer often but I know Linda and her son Michael will be comforted by knowing people are praying for her, And that matters a lot.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | We are here for you - at any time you need us. I too am sending prayers and best wishes for a speedy recovery from this surgery. As you know there is so much that can be done these days with chemo and radiation, as you have both already experienced. I know a woman here that has had cancer three times and is just fine. Keep us posted. Many hugs for your both.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi David and Linda:
Although it's not the best results you could get, there is hope that she can get over this terrible problem. It sure will be tough for both of you, but hopefully Linda can go through treatments and be cancer free. I have always believed in prayers, although when horrible things happen it does make a person doubt. I just know there is a GOD in heaven and will send my prayers for Linda's recovery. I'm sure most of the Forum will do likewise, and you do too, David. We are a family and we care for you both. Assure Michael that we love his Mom and our prayers are on the way.
Hugs from julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Keeping Linda in my thoughts. Some cancers other than OC are easier to treat. I hope what Linda is going thru will be an easy road for her.
Being asleep is not a bad thing after going thru a huge surgery. It gives her body time to begin heeling and she doesnt have to deal with pain issues. I was was kept in a medically induced coma for 3 weeks. Besides a few memory blips here and there I have gotten past that bad period and am doing well if thats any consolation. Linda is equally resilient and will be on the right path before you know it.
Please be kind to yourself, caregivers need care too. Hang in there!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Geez David this is a shocker. You 2 have been thru many wars together the last few years. I sure will have her in my prayers and thoughts. I'll have you there too old buddy. My love to you both.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Jim, you are a great example of resilience and fighting spirit. Thank you.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | I would really like to be here as support for all of our friends who are fighting this battle but it seems that lately, all I have to post is more negative stuff about my own and my family's ongoing medical issues. Sorry bout that. Anyway, I saw Linda this morning. She still hasn't awakened but is doing better, more relaxed and moving her limbs some. Another surgery tomorrow a.m. Michael is finally getting some sleep. This is very hard on him and he hasn't slept much the last few days. I'll just let him sleep now and I'll go over to see my Mom in a little while. She made some bread pudding with lemon sauce for me to bring home. yum.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | David - You have already been here to support others many times over. It's time for you and Linda to be on the receiving end of whatever support we are able to give you. Glad to hear that Linda is doing better. And how nice that you will be seeing your Mom. It always helps to have a Mom around, especially when she has delicious bread pudding for you! Sending prayers for everything to go well with Linda's surgery tomorrow. Keep in touch and let us know how everything goes.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2008 Posts: 711 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Sep 2008 Posts: 711 | Yesterday's surgery went well. Linda is closed up and stable. Her pulmonologist was there yesterday pm. While we don't yet have pathology back, he painted a very grim picture re the cancer and how much it spread. We'll wait til we talk to onc. and get all the results before we get really freaked out but, honestly, I hsve never been more afraid of what the future holds. Even if she makes it through the current crises, there's still the cancer to face. I feel sick in the face of all this.
David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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