| Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | [quote=girlcat36]I am dumbfounded by the reaction on air by my local FOX news team to this story! [/quote]It's not just the Fox Newsies who are doing this. This morning I was watching MSNBC's "Morning Joe," where in the first part of the first hour there was a segment involving a LOT of wink-wink, nudge-nudge, guffaw-guffaw about the NY Post story among Joe Scarborough (admittedly a conservative) and the more liberal members of the MJ team -- including, I regret to say, Mika Brzezinski, whom I always considered a voice of reason in that group. I found contact information for the show and shot off a quick email castigating them for their sophomoric efforts at "humor" -- noting that behaving similarly if the subject was a woman talking about how she got cervical cancer would set off a Twitter storm. I also noted that there was a preventative vaccine for the carcinogenic forms of HPV and that perhaps their air time might better be used to urge vaccination against this potentially deadly virus (as Texas Governor Rick Perry did; he may have faults, but that wasn't one of them) instead of making fun of Michael Douglas for his sexual behavior. I'd like to think it made a difference. Normally the first 20 minutes or so of the 8 a.m. hour consists of a rerun of the first 20 minutes of the 6 a.m. hour. Not today!
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | I just read today that Jim Kelly, hall of fame QB of the Buffalo Bills was diagnosed with SCC of the upper jaw. Perhaps this can be another positive that can piggy back along with Michael Douglas.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | Good Morning America interviewed their doctor and he discussed this maturely and suggested the vaccine. I think Robin Roberts would have punched someone if they had been tacky about it.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 |
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Brain, as always....great job!!! Its about time HPV, OC and OCF got some attention. Looking forward to seeing how this plays out. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I look forward to reading Brian's press release. I guess there will be a link here? I have read so much misinformation written in the last 24 hours and also look forward to see how it plays out. Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | Yes. Please provide a link. I am looking forward to Brian's press release as well.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,916 Likes: 63 | This is probably not going to be available until tomorrow afternoon. I did 34 interviews today in the media, on Iive radio in local markets like St. Louis, and had more conversation with journalists than I could count, giving them background information on HPV and oral cancer. I literally started talking at 5 in the morning and did not get off the phone till 6 tonight. Natalie at the office got the callers in a queue, and I started working each one. What a day�. my voice is gone. The media people were all pretty good, some were just looking for a quick factoid, some wanted strong background that took lots of time to get them to understand things, and some wanted just referrals to good doctors to get on their TV shows. LONG day, but a good day for the cause. As we all saw today, my grandfathers adage that the "masses are asses" still is true. The comments from the general public in most of this are probably why Douglas is backpedaling on his statement about HIS cancer being HPV+, who would have guessed it would have blown up Google and the social media world when he gave one simple interview. Allen who is his gatekeeper put out the release stating that he didn't mean HIS cancer, but this is obviously not what he said when he did the original interview. I think his entire team is overwhelmed by the public shitstorm this opened up. When I talk about my sex life on TV only my wife cringes and gives me crap, 90 % of the whole world is giving him shit. This is all really too bad. We have a celebrity advocate that was willing to stick his neck out, and what happens. Idiots happen.
Last edited by Brian Hill; 06-03-2013 08:19 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Nov 2012 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Nov 2012 Posts: 58 | Brian,
Thank you and great job.
Stacey (Caregiver to Husband) Lymph Node Removed 10/12 Dx SCC MET 10/12 No Primary Tumor Found IMRT x 33 (Started RT late 11/12) CT Scan and PET Scan Clear 4/13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Brian, you sure had one heck of a day! Great work!!! Thank you for attempting to educate the media people. Hope some of them will get it right.
Thanks for everything you do to make this world a better place.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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