| Joined: Jun 2013 Posts: 16 Member | OP Member Joined: Jun 2013 Posts: 16 | Hi, I have had persistent whitish sores for about 3 to 4 weeks. I have treated them as canker sores, but now I'm worried they might be malignant. There is one on the inside of my lower lip, left side, and there seem to be two sores on the left underside of my tongue. My tongue had been burning for some time. Now it's tingling, and so is the inside of my left cheek and lips. Also I have this "metallic" sensation. I have decided to see a doctor this week to exclude (hopefully) malignancy. Hope it's still Grade 0! Kind regards, Mike
Last edited by Mike1950; 06-02-2013 01:06 AM.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Welcome Mike. You're doing the right thing going to see a doctor for any symptom, like a sore, that doesn't go away in several weeks. Most times, its something other than cancer, like a bacterial, fungal of viral infection. Certain medical conditions causes mouth ulcers like neutropenia and anemia, certain medications, sharp edged foods, spices, smoking, drinking alcohol. Do you smoke, snuff, chew tobacco, If you do, stop, and if lesions are caused by this they may resolve itself. I'm not a doctor. but that's a lot of sores at once, including the lip, so may be something more systemic (infection) is causing them, maybe not, could be combination of ailments too with co-existent cancer, result of sun exposure, and something called " field cancerization" where you have mutiple primaries, usually from alcohol/smoking, but only a doctor can make a diagnosis with a biopsy.
Try to go to an ENT that has experience in cancer. Good luck with your doctor.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2013 Posts: 16 Member | OP Member Joined: Jun 2013 Posts: 16 | Dear PaulB,
thanks for your kind advice. I was beginning to feel like I was being ignored.Lol I was surprised to find out that in the States the ENT specialist seems to be one of the usual ports of call. My wife had a mc scare a couple of years ago, and we consulted a university dental surgery department in Germany. I am a one-time survivor of cancer already (liposarcoma). That was in 1989 at the age of 39. Strangely I'n not as nervous or desperate as I was then. I have only had these symptoms for about three weeks. So I hope it turns out to be only grade 0 or I, if it should be cancer. I have an appointment on Tuesday. Will take some time if a biopsy is called for. Thanks again. Warm regards, Mike | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | There is a difference in times zones, and saw this post after waking, and wasn't there last night. I know certain medical care, specialists, may be required to obtain differently in other countries, but some in the U.S. need to see their general pratictioner or get insurance clearance first before going further. Fortunately, I can go anywhere with no restrictions. An ENT is the one to go to next, if cancer is suspicious in the HN. Sorry for you liposarcoma. Could this have something to do with your current situation, which can occur anywhere, Secondary primaries, even Lowered immune system. Anyway, the dr knows best, and should be considered a higher risk for neoplasm due to this. I hope all tests come back negative. I always wanted to go to Thailand, my dream vacation, one day, but can't eat spices anymore  Hope life is good for you out there otherwise.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2013 Posts: 16 Member | OP Member Joined: Jun 2013 Posts: 16 | Dear Paul, no I don't think it's got anything to do with my sarcoma. That was 24 years ago! Also the sores do not have to be connected, Burning tongue syndrome might be an alternative. Anyway, so long! Mike | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Any sore you have in your mouth for 2 or 3 weeks that does not heal on its own should be checked by a professional. I had my 'canker sore' for about 2 months before I had it checked. I suggest you go get checked out to be certain its not cancerous. To the average person a cancerous tumor can look exactly the same as a canker sore (at least thats how mine looked). Check out the image gallery. Some of the things you may thing look like cancer really turn out to be something else. Click on each photo then click on the word diagnosis to find out what the person was diagnosed with. Oral Cancer Photo Gallery Best wishes!
Last edited by Brian Hill; 06-02-2013 09:06 AM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jun 2013 Posts: 16 Member | OP Member Joined: Jun 2013 Posts: 16 | Dear Christine, thanks for your kind message. I have my first appointment with an ent specialist tomorrow. I'll be content if the cancer is confined to the tongue. Not being able to speak after surgery does not bother me much. Have never been much of a talker anyway. And nowadays one can communicate via sms and chat. I'll keep you posted. Take care! Warm regards, Mike | | | | Joined: Jun 2013 Posts: 16 Member | OP Member Joined: Jun 2013 Posts: 16 | Hi, saw a very young (& pretty) Thai ent doctor today. She thought it was not malignant, and prescribed a special ointment. She will check me again two weeks from now. If the ointment helps, it's ok. Otherwise I may ask for a second opinion. After a bad night, I am sure I'll sleep better tonight. Hoping the medication will get rid of the symptoms. I'll keep you posted. Take care! Warm regards, Mike | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | The Metallic sensation may be blood that you are detecting. Usually diffuse symptoms - many of the same kind of thing but in different areas is indicative of something other than cancer. Nothing is every 100 percent of course, and sometimes you will get a primary with maybe another somewhere else but a lot of whitish patches makes me think infection. I do have to say - after my biopsy - i did have burning and tingling where the tumor had been cut. But again I'd agree with your dr. likely not malignant, however if it doesn't respond to her treatment, then push to have a biopsy done. better safe than sorry.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2013 Posts: 16 Member | OP Member Joined: Jun 2013 Posts: 16 | Hi Cheryl,. thanks for your kind advice. Well, I have started applying the ointment. I believe the 2 whitish hard "spots" on my lower left inside lip will be harder to get rid of with the ointment than the "grey" patch sore on the left underside of my tong. The doctor was a bit young though. I suppose she would prescribe the ointment before bringing up the heavy artillery such as biopsy, x-rays etc. if the prescription should not get rid of these symptoms. Depending on her reaction I might ask for a second opinion. As for the metallic sensation/taste I did not notice any blood. Take care! Warm regards, Mike | | |
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