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Thanks for updating us, David. So good that Linda has you and that you will be getting another opinion. Hope it brings some new more hopeful information.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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If Linda will be getting a trach, ask them for a possey muir valve trach so she can easily talk with it in.

Best wishes to you both with everything!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Thx Christine. I'll ask about that.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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I think you need some clarity and a second opinion may help with that. Making decisions for another human being - particularly one you love - is very very hard. My heart goes out to you. You know your wife, and what she is made of. Do you think she is strong enough for whatever you think needs to be done to cure her? Then ask yourself if would she want this, talk to her see what she feels about the situation. Then make your decision. When I was diagnosed I determined I would do what I had to - no regrets - to try and fight this disease. You and she need to talk. If you can't then ask yourself, what would she want, and voice it to her, see if she concurs. Its only a nod or a head shake away. Hugs to you.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Linda is doing better every day. She's been breathing on her own the past 2 days and the P.T. got her out of bed and into the recliner. I do believe she will gain the strength to battle the cancer. But, with the agreement of her docs, she has not yet been told of the cancer. She sti9ll has to battle back to health and we're afraid to hit her with everything at once. I really do not look forward to that conversation. I know she has told me in the past that she wants a dnr order, but nothing in writing and she was resucitated (sp?) the 1st day in the hospital when I wasn't there. I think she knows that and is ok with it. It's terribly hard to know how to handle this. Her son, Michael, is on board about not telling her too much to soon but he is very much against the dnr. I'm afraid that this is only going to get harder.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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David: I'm dumb - what is a dnr? My prayers are that Linda can get over the immediate problems and then continue into curing the cancer. Sounds like a lot, but it's been done by others, and with your help (and Michaels), I pray it can be done by Linda. Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Do not resuscitate.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #166036 06-05-2013 09:27 AM
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Thanks, Paul. I assumed it was something along those lines - hate to even talk about such, and I know David and Michael hate it. I pray that Linda can get well, then accept and be able to endure her upcoming battle. Such sad news, but others have succeeded, and I pray she will also.

Julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
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Yeah... DNRs are funky. I am not necessarily pro DNR. The treatment my dad received with out a DNR was by far, not the same treatment he received with one. I think it's almost better to have someone you trust making this kind of decision for you. As long as you talk to them and they know your wishes, it's the way to go.

Someone who loves you will abide by your wishes and not let you suffer. My step dad had me as his POA. When he was sick and unconscious - and dying - they kept approaching me about turning off his ventilator - to me - him suffocating to death was NOT okay. I knew he was a strong man and if anyone would get better it would be him. SO I told them as long as he was in no pain (he wasn't) I would rather allow his body to decide. In the end it did. But they hounded me for three weeks.

hugs. I hope you don't have to go this route.

Last edited by Cheryld; 06-05-2013 09:48 AM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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I put myself on DNR in 2010. Actually, I did not want to live like I was on my death bed for several months, which was pretty bad. A doctor didn't call me train wreck for nothing, I looked like Hell Raiser and Freddy Kruger. Anyway, several doctors, staff, had to speak with me, sign papers, and put a yellow band on my wrist. So be careful with those yellow support ribbons, which stands for DNR also Low and behold, I'm still here.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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