| Joined: Feb 2013 Posts: 13 Member | OP Member Joined: Feb 2013 Posts: 13 | Is there a last of physical activities that are okay with a PEG tube? My husband is afraid riding a jet ski or roller coaster might jar the tube and we can't find answers online. Thanks!
Lori, wife of Phil, 54 Phil's data: SCC dx spring 2012 right side of tongue, stage 1 Tumor removed from tongue and lymph nodes in neck 5/12 ALL margins clean, ALL lymph nodes clean SCC near 1st tumor stage 1 dx 11/12 Erbitux infusions and rad began 1/28/13 No known cause of cancer
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | You can do anything, within reason, no wrestling lol. You can swim with a peg, except maybe two weeks post surgery. You may want to put a clip on the tube incase the plug pops open, secure the tube to body by Saran Wrap, tape or flexible bandage. I would make sure to clean thoroughly afterwards, maybe apply Bactrim, due to the microorganisms, pollution in salt water, fesh water, and who knows what in pools. Why not call the doctors office to check.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | With a feeding tube the GI doc should give you pamphlets about the do's and donts of having a feeding tube. One big dont is with lifting heavy items. My doc advised nothing over 15 pounds for me. Im not very strong anymore so I cant lift more than that anyway. Another big thing is to keep it clean and dry. A gauze pad with a slit cut half way thru the center is called a drain sponge. Keep one of them between your skin and the plastic guide thats on the tube by where it goes into your stomach.
Ive been told be a couple different doctors to avoid swimming. They said the dirty water you are swimming in can seep into your body thru the gap at the peg site. They also said it can irritate the peg site and could cause infections. Maybe it has something to do with which type of tube you have. The Mickey button allows for more freedom. I still swam a couple times with my J/G tube. I even swam with my piccline which was an even bigger no-no. I would wrap myself in the Glad Press and Seal plastic wrap and swim for a few minutes. Ive never ridden on a jetski before so I dont know how strenuous it is and how it affects your abdominal muscles.
Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Feb 2013 Posts: 13 Member | OP Member Joined: Feb 2013 Posts: 13 | Thanks! We got no info on do's and don'ts and it's quite frustrating. I wonder if a gastro doc would have info that would help better than what the RO or MO could. This info from you two is more than we've had in 2 months! He's starting to eat more foods daily! Exciting! 
Lori, wife of Phil, 54 Phil's data: SCC dx spring 2012 right side of tongue, stage 1 Tumor removed from tongue and lymph nodes in neck 5/12 ALL margins clean, ALL lymph nodes clean SCC near 1st tumor stage 1 dx 11/12 Erbitux infusions and rad began 1/28/13 No known cause of cancer
| | | | Joined: Feb 2013 Posts: 13 Member | OP Member Joined: Feb 2013 Posts: 13 | I just realized I put in the wrong age for my dh. He was 55 when I joined and is 56 now! LOL!
Lori, wife of Phil, 54 Phil's data: SCC dx spring 2012 right side of tongue, stage 1 Tumor removed from tongue and lymph nodes in neck 5/12 ALL margins clean, ALL lymph nodes clean SCC near 1st tumor stage 1 dx 11/12 Erbitux infusions and rad began 1/28/13 No known cause of cancer
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Yes. The gastro doc probably put it in, he did mine 2x. Here is sddiationsl info on swimming, http://www.oley.org/Swimming.html
Last edited by PaulB; 05-28-2013 07:18 AM. Reason: Link
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Good find, Paul! Thanks for posting this important info. Many members have tubes and with summer coming this is important. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I want to jump in the pool myself. I can swim good, at least used to, but I don't know about getting out. At least the Y, and many public pools, are required to have access lifts for those that need it. I can manage.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | I was told I could do pretty much anything within reason and that I'm comfortable with. However, the information I got when my PEG was put in as well as from the docs was no swimming.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I think if you are able to tape the system in place with a good water proof system, a little swimming isn't a bad thing. finding a heavy duty waterproof bandage is the hard thing.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
Forums23 Topics18,252 Posts197,147 Members13,332 | Most Online1,788 Jan 23rd, 2025 | | | |