| Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | I'm three weeks post treatment. Recovery is painfully slow (literally). To add to the misery, I came down with a gout attack on my left foot the beginning of May. It started in my ankle and moved to the big toe. I had a previous attack 5 years ago but not nearly the severity of this one. I went for a followup with my MO on the 6th and she told me that gout is a side effect of Cisplatin. Nice eh? It's better but still lingering enough to be uncomfortable.
Anyone else have this happen? Other than meds and ibuprofen, any other remedies, solutions to keep this at bay?
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Yes...it can be Hyperuricemia from the chemo causing increased cell death wih increase in uric acid, although could be other causes, contributers. I just had surgery, 2 blood transfusion, almost on dialysis from uric acid kidney stones, from chemo, causing acute kidney failure with creatine at 7.2, hemaglobin 7. I assume your doctor's know, monitoring you, and May seems far away to wait. I had Taxotere, Erbitux my last treatment, which ended in November '12. I had a similar bout, probably worse, in 2010, 5 months post treatment from Taxotere, Cisplatin, 5-Fu, and almost didn't make it. Here is a link that may be helpful. maybe try to see your doctor, have a blood test sooner. Good luck. http://chemocare.com/chemotherapy/side-effects/hyperuricemia-high-uric-acid.aspx
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Hi Paul, Thanks for the info. I have standing orders for blood work once a week locally. They send the results to my team and they contact me of something is amiss. I have that done on Mondays. I haven't heard back this week. It's getting better but it's still pretty uncomfortable. Fortunately, the liquid Oxy I'm on takes the edge off Thanks again Paul. I'm going to write my MO and she what she has to say. "T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | A standing order every week sounds good. Every time they tell me to come back in three months, I wind up having a problem. My oncologist had to call me a day after my blood work, and would rather monitor it more closely.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 134 | Dark cherry juice. Find it at vitamin shoppe, gnc or whatever health/nutrition shop is near you. Mix it with water or chug it (like I do). It is not sweet. It actually doesn't taste great but keeps me attack free
Dx March 2011 via FNA (49 yrs old) SCC BoT HPV+ exact strain unknown Stage IVa T3N2cM0 Cisplatin x 3, IMRT x 40 (7267 cGy) One node removed post-treatment (rad dmg) Clean PET 10/28/11 Swallow therapy | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | Thanks for the feedback. I contacted my PCP as I'm due for a follow-up appointment and blood work. He checks cholesterol and other heart related numbers. I'll have him check uric acid levels and a few other things while he's at it.
The attack has waned over the last week but I still have stiffness and pain in the foot.
"T"
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I had blood work done yesterday...CBC, CMP, Uric Acid. Good luck with yours.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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