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ChristineB #164495 05-03-2013 04:38 AM
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I am so sad to read this! Having lost Ken suddenly as well it is so hard to comprehend how they can fight so hard and still leave so suddenly. My thoughts and prayers to Bev and the rest if his family and to everyone here who got to know Charm - it is a sad day for all if us.


Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
ChristineB #164496 05-03-2013 04:50 AM
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Posts: 440
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I'm so deeply saddened by this news. Thank you Christine for sharing this on FB, I often don't get on here anymore. Charm was just that....a charming individual. I enjoyed getting to know him and Bev in San Antonio, he truly was a great guy with so much heart and knowledge. He will be missed.


Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
ESikon #164497 05-03-2013 05:18 AM
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Posts: 476
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WOW - so terribly sad. It's so sad and difficult when we loose one of our beloved members here. Tom (like you Christine) dedicated so much of himself to all of us here that a HUGE void will definitely be left behind.

Christine I'm so sorry for the loss of such a special person in your life. My heart goes out to Bev and Tom's entire family.

Heaven is definitely a brighter place with Tom's presence.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
ChristineB #164498 05-03-2013 05:18 AM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
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Rest in peace Charm. A giant among men.xxx


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #164499 05-03-2013 05:45 AM
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Christine: Now I know what your Facebook message was, and I am so terribly, terribly sad about Charm. I know you are destroyed by the news, but thank you for telling us. Charm was the NO. 1 FIGHTER in our group, and everyone will miss his wise advise and posts. May he rest in peace now and forever.

julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
ChristineB #164500 05-03-2013 06:03 AM
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So terribly sad to hear this news. My heart goes out to all who knew and loved him.



Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
ChristineB #164501 05-03-2013 06:30 AM
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Charm, of all the online friends I have you touched me the most with your heartfelt passion for living the right way, speaking the truth, forget the sugar toppings. I will truly miss you my friend; I was just so worried recently as your posted dwindled, knowing they reflected your true health condition.

Gdd Bless by dear friend,
don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
ChristineB #164503 05-03-2013 07:57 AM
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I am so shocked and grief-stricken to hear this news. Christine, I express my condolences to you because you, especially, knew him well. I also express my condolences to his beloved, Bev.

Charm and I were diagnosed with recurrences about the same time last summer. He told me that he was very competitive and wasn't going to take this lightly. We had an agreement to cross the finish line together, holding hands. He held me up when I needed it, going through rads and chemo for the first time. Afterall, he was an unfortunate expert.

In our later interactions, we would do more PMing to check up on each other as neither of us felt much like posting. I knew he was not doing well from what he told me, but I had no idea how badly he was doing. I think he spared me his problems so as not to scare me.

Well, Charm, dear buddy...I read this news and let out a huge gasp, so much so that my 4-year-old daughter came running over to see what was the matter. We were not ready to lose you, especially without saying "goodbye", but as always, you did things on your own terms. That was one of your most admirable qualities, among many.

I know you will be watching down on us, dear friend. You will always be remembered, never forgotten.

I love you, you stubborn "old Frack". May you be at peace now, with only joy and no sorrow. I'm so glad we met.

Love,
Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #164506 05-03-2013 09:36 AM
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What a beautiful message, Kerri. Charm will be proud smile


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
ChristineB #164507 05-03-2013 09:42 AM
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Charm's family has asked that instead of flowers that donations be made to The Oral Cancer Foundation's Tom Baker Memorial Fund.

There is a photo of Charm and his lovely wife Bev. I took this photo last September at the NJ OCF walk hosted by Susan Lauria. Charm especially loved being among his fellow OC survivors as is evident by the smile on his face.

Tom Baker's Memorial Fund



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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