| | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: Jan 2011 Posts: 123 | I am so sad to read this! Having lost Ken suddenly as well it is so hard to comprehend how they can fight so hard and still leave so suddenly. My thoughts and prayers to Bev and the rest if his family and to everyone here who got to know Charm - it is a sad day for all if us.
Jill..CG to Ken, age 43,mom of 1yr old girl.
DIAG:12/9/10 SCC BOT T4N0M0 HPV+
START:1/3/11 IMRT dailyX35 and 7 chemo
END:2/23/11 PEG IN:1/15/11 Out:4/26/11
CT/MRI 4/25/11-marked improvement CT 6/11 new spots
BX 6/23-cancer present
Total Glossectomy sched 7/20/11
7/19/11 Ken's suffering ended
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | I'm so deeply saddened by this news. Thank you Christine for sharing this on FB, I often don't get on here anymore. Charm was just that....a charming individual. I enjoyed getting to know him and Bev in San Antonio, he truly was a great guy with so much heart and knowledge. He will be missed.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2009 Posts: 476 | WOW - so terribly sad. It's so sad and difficult when we loose one of our beloved members here. Tom (like you Christine) dedicated so much of himself to all of us here that a HUGE void will definitely be left behind.
Christine I'm so sorry for the loss of such a special person in your life. My heart goes out to Bev and Tom's entire family.
Heaven is definitely a brighter place with Tom's presence.
Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Rest in peace Charm. A giant among men.xxx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Christine: Now I know what your Facebook message was, and I am so terribly, terribly sad about Charm. I know you are destroyed by the news, but thank you for telling us. Charm was the NO. 1 FIGHTER in our group, and everyone will miss his wise advise and posts. May he rest in peace now and forever.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: May 2012 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2012 Posts: 114 | So terribly sad to hear this news. My heart goes out to all who knew and loved him.
Amy CG to mom Janet - diag w/ early SCC 8/11-surg w/ rad neck dissect & graft from arm/thigh 9/11-evid in nodes tx 6 wks rads (5/wk) w/cistplatin (1/wk for 6 wks) began 11/11-wk or 2 break 12/11 due to severe side effects-done 1/12- 3/23/12 mets to liver lung bone-hospice 4/7/12-lost fight 4/22/12
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Charm, of all the online friends I have you touched me the most with your heartfelt passion for living the right way, speaking the truth, forget the sugar toppings. I will truly miss you my friend; I was just so worried recently as your posted dwindled, knowing they reflected your true health condition.
Gdd Bless by dear friend,
don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2011 Posts: 596 | I am so shocked and grief-stricken to hear this news. Christine, I express my condolences to you because you, especially, knew him well. I also express my condolences to his beloved, Bev.
Charm and I were diagnosed with recurrences about the same time last summer. He told me that he was very competitive and wasn't going to take this lightly. We had an agreement to cross the finish line together, holding hands. He held me up when I needed it, going through rads and chemo for the first time. Afterall, he was an unfortunate expert.
In our later interactions, we would do more PMing to check up on each other as neither of us felt much like posting. I knew he was not doing well from what he told me, but I had no idea how badly he was doing. I think he spared me his problems so as not to scare me.
Well, Charm, dear buddy...I read this news and let out a huge gasp, so much so that my 4-year-old daughter came running over to see what was the matter. We were not ready to lose you, especially without saying "goodbye", but as always, you did things on your own terms. That was one of your most admirable qualities, among many.
I know you will be watching down on us, dear friend. You will always be remembered, never forgotten.
I love you, you stubborn "old Frack". May you be at peace now, with only joy and no sorrow. I'm so glad we met.
Love,
Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | What a beautiful message, Kerri. Charm will be proud
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | OP Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Charm's family has asked that instead of flowers that donations be made to The Oral Cancer Foundation's Tom Baker Memorial Fund. There is a photo of Charm and his lovely wife Bev. I took this photo last September at the NJ OCF walk hosted by Susan Lauria. Charm especially loved being among his fellow OC survivors as is evident by the smile on his face. Tom Baker's Memorial Fund
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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