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ChristineB #164485 05-02-2013 09:25 PM
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Terrible news! I always believed that he will be able to come out of last recurrence.

May his soul rest in peace. We all will miss his guidance and support.


Father; 67 yrs; RIP: 2012/05/26

TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
ChristineB #164486 05-02-2013 10:03 PM
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I too am saddened beyond belief. What an inspirational man Charm was. He was definitely a role model for me.
I always looked forward to his posts and the very " black and whiteness " of them.
Tom, you will be greatly missed. At peace.
Bev, what a wonderful Wife, Partner,Soulmate, Caregiver, Supporter you have been to Tom. I wish you strength for the coming days, weeks, months to come.
Tammy and Kris.


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
ChristineB #164487 05-02-2013 10:37 PM
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I, along with many others I'm sure, kind of felt he was invincible...I am so sorry to hear of this news.


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
ChristineB #164488 05-03-2013 03:33 AM
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Oh no . . Oh no. . . ! I'm so sorry to hear this sad news! I had so hoped and prayed that Tom - our much loved "Charm2017" could be with us much longer to continue to share his uniqueness with us. I always looked forward to his posts, and the inimitable way he had of expressing himself. I loved his directness, his humor and the love for his family that came through loud and clear. I so wanted to meet him and Bev some day. The tears flow now, and my heart breaks for all of us and especially for Bev and all of Tom's family. Thank you, Christine for letting us know about our dear, dear Charm. He will be with us always in our hearts.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



ChristineB #164489 05-03-2013 03:44 AM
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I'm so sorry to hear this. Sad for his family and for us all.


Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
ChristineB #164490 05-03-2013 03:47 AM
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What a shock. I am so sorry to hear this. I really thought he would be indestructable. Charm has been so much part of this forum with his wonderful posts. He will be much missed by all of us but I feel especially for Bev and everyone close to him.


Dx 10/11 51yrs LBOT Stage 4 2nodes HPV16+. Non-smoker mod alcohol.
10/11 Induction chemox2 (Docetaxel, 5-Flu, Cisplatin) then Cisplatinx2 IMRTx30. Ended 01/13/12.
12/07/11 RIG. RIG removed 05/05/12.
4/12 CT scan clear. Visual scope checks clear as of 10/13. Learning to live with eating challenges.
ChristineB #164491 05-03-2013 05:07 AM
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What a waste!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
ChristineB #164492 05-03-2013 05:27 AM
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I am so sad to read this. I always admired Charm so much, for the support he showed Steve and I, his fighting spirit and most of all the love he held for his wife. Earth is a much sadder place without him here but heaven is so much better with him. Love to you Charm and to your family xo


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
ChristineB #164493 05-03-2013 05:29 AM
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In the short six months that I have been a member of this forum, Charm was the beacon for me. I looked forward to his every post, sometimes for the knowledge, sometimes for the humour and always for his unique outlook. He embodied the fighting spirit that we all so badly need in this battle. I am heartbroken.

My condolences to his family and to Christine for her loss of a dear friend.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
ChristineB #164494 05-03-2013 05:37 AM
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I am saddened beyond belief. Charm never suffered fools gladly, and always knew how to put things in perspective. RIP "OldFrack". You have made an impact on so many lives.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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