| | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hi Kevin - Hope everything goes well today with the biopsy! Come back here and let us know how it goes.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Apr 2013 Posts: 7 Member | | OP Member
Joined: Apr 2013 Posts: 7 | Anne-Marie,
For sure! Thank you! | | | | | Joined: Apr 2013 Posts: 7 Member | | OP Member
Joined: Apr 2013 Posts: 7 | Ok...I had the appointment with the Oral Surgeon today. He wasn't too concerned about what he saw. His thought was that it was a calcified deposit. I know there is an official name but it slips my mind right now. Of course the only for sure way to know is with a biopsy so he numbed up my tongue, cut it out, and sent off to a pathologist. I have a follow up appointment set for next Tuesday.
A few thoughts...
-I know the biopsy could come back saying something else, but for now I'm going to hang my hat on the hope that the oral surgeon gave me today with his initial diagnosis. If anything its going to help me get through this week. I've been more than a little useless this past wee with worry. In fact I went to visit my GP on Friday and my blood pressure was well within normal range. When the Oral Surgeon took my blood pressure today it had skyrocketed!
-I really appreciate everyone's prompting to be an advocate for myself. It really is true that you need to take responsibility for getting answers. All the doctors have been great! Doing the homework on my end like writing down all of my questions ahead of time, listing out my symptoms, and getting blood work done in preparation for today made all the difference.
-I wanted to do something positive so I went and got a Starbucks gift card for the dentist's office. I took it in along with a little note for the receptionists who helped get me the appointment, the hygienist who found the bump, and the dentist who was pro-active about monitoring it. Based on some of the stories I've been reading I'm blessed to have a dental practice that does their job well and are overly cautious. I definitely wanted to affirm that in them all today.
Anyways, I'll post another updated next week. I think I may be able to get some sleep tonight. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kevin, Im very glad that you have had a biopsy. Thats the way to know for sure. I see you have learned quite alot about how to manage your health. Patients must speak up for themselves. What a nice thing for you to do for your dental professionals! You are correct that not every office is right on top of things like this. You are one lucky person! Hoping your biopsy comes back with good news.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Good for you, Kevin! Hoping for more good news next week!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Me too - fingers crossed you get an all clear.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2013 Posts: 7 Member | | OP Member
Joined: Apr 2013 Posts: 7 | I bugged the oral surgeon's office today and got the doctor to call me today to go over the biopsy. Its benign and non-cancerous. He told me what it was but all I heard was the not cancer part. I have a follow up with him on Tuesday and then an ENT appointment on Thursday to figure out some of the issues I'm having.
Really appreciate the well wishes and patience with my freaking out! | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's awesome!!!! ;o) let us know what it is he calls it... it could be lichen planus, or just general displasia...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Apr 2013 Posts: 2 Member | | Member
Joined: Apr 2013 Posts: 2 | I feel for you,I'm scared also and have been through this before.
Debbie *year Oral caner survivor Chem three times Radiation 2 months
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