| Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | Hi Julieann,
Thanks for the very lovely compliments. Unfortunately, you have incurred a bill for the new hat I'm going to have to buy, since you've caused my head to swell right out of the one I've been wearing! And here's a big Grateful hug to you, from another of your "C" friends!
As you might guess, part of my attitude comes from my experience getting shot and recovering. I went back to the states via the military MedEvac system, and spent 22 days in that system. Believe me, surrounded by young kids still in their late teens who have been shot, blown up by high explosives or fallen into a pit full of sharpened stakes, smeared with human feces, and impaled on those stakes makes it pretty hard to feel sorry for one's self.
But I'm really grateful for the experience, and believe me, those 22 days were very rich in that commodity.
Some of those were pretty funny, if you keep your sense of humor, and some were unspeakably horrible. Here's a example of each.
After 9 days on the critical list in the ICU in Pleiku, my fever had dropped to 105, and I was deemed well enough to proceed on the evac route. The next day, several of us were loaded (on litters) into the back of an army 3/4 ton field ambulance, taken to the air field and flown to Quinhon, on the coast, to await the arrival of the bird to take us on to the Clark AFB in Phillipines.
We had to RON in the field hospital in Quinhon that night, and as they unloaded us and brought us into a holding ward (Quonset hut ward) and put me into bed; I noticed that there was a window directly across from my bed and I could see the perimenter chain-link fence just outside, with jungle beyond.
I didn't think much about that, until a guy in hospital PJs and Robe came in on crutches, with what looked like a (large) fresh bandage wrapping around his calf. There was a corpsman nearby, and I asked him what the story on this guy was.
The corpsman responded, "Oh, that's LT smith, the Nurse assigned to this ward." We have a sniper in the area, and he shot the LT shot in the leg a hour ago as he was leaving for breakfast." Well, that was not as comforting to hear as you might imagine, and I promptly requested to be moved to a "No Sniping" bed.
The other side of that coin is not so deliciously humorous. Not at all.
The first night (of 10) I was in the hospital in the Phillipines, I was put in a room with just one other occupant, a young soldier who'd been evacuated directly there from the battle field. He's lost his right arm just above the elbow and his left just below the elbow. He'd also lost his right leg just below the knee and his left one, just above. He had third degree burns over 20% of his body; and he'd been shot through the larynx, so was unable to even call (or whisper) for help.
The pure, unadulterated suffering that poured from that young man's eyes was the hardest thing to bear one could imagine, and thank god they moved me into another, much larger room the next morning because I would surely have lost it completely if I stayed there, helpless to aid him in any way.
But when they put me in another room the next day, there were 9 soldiers there already, and all had colostomies (as I did, and for the same reason) and the atmosphere was more like a squad-bay (mil equivalent to a college dorm); lots of laughing, joking and just general grab-ass, with each of them trying hard to project the most "it ain't no big thang" attitude about their wounds.
You see, they had seen the alternative to being where we were, and they were damn glad to be where we were, and not in a body-bag somewhere. That realization has a remarkable way of improving one's attitude about one's condition, what ever it is. It was truly an honor to be amongst those brave young men; and the fact that we all knew was that not all of them were going to be around another year.
Perspective. It helps to keep it. Likewise, you sense of humor, which is indispensable for anyone who doesn't like suffering. Laughter is remarkably healing.
And I'm remarkably long winded. Sorry 'bout that .
Last edited by Bart; 04-08-2013 01:27 PM.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I salute you Bart, for your service, and have my respect.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Hi, Bart,
I really enjoyed your stories: interesting, inspiring, and refreshing. You have a wonderful sense of humor, too. Thanks for sharing.
My best- Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2007 Posts: 595 | Bart, Hang tuff and keep up the Warrior mindset!!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | Hi Paul, Anita and Bob,
Paul, many thanks, amigo, and know that you and all the others here have MY respect, in turn!
And thank you for the very kind words, Anita. Maybe you could join up with the lovely Juliann and split the cost of that hat...
And Bob, thanks for the Semper-Fi! I love Uncle Sam's Misguided Children, and am very happy to meet one who is a 5-year survivor. I expect to be one too, to represent those fools who jump out of perfectly good airplanes.*
*In my dictionary, the entry for "Oxymoron" reads, "See perfectly good airplane."
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey Bart welcome, there are a few here who've had multiple dances with C - Paul, and charm, and Christine, and Eric are all part of the multiple survivors group, though liver mets is a little more involved! Hopefully you stay clean this time. Hugs and again welcome... And I totally agree, overall health and physical activity plays a major role!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | Thanks for the warm welcome, Cheryld! And the Hugs and good wishes. Please allow me to reciprocate and give you my hugs and best wishes for a permanently clean future for you, as well.
And for that matter, I wish the same for everyone on this list!
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Aug 2013 Posts: 144 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | hey bart, I want to let you know that you are in the right place. people here are truly amazing in their constitution. I hope to hear more from you. hopefully good news. Welcome, Shawn U.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | OP Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | Hi Sunderwood1111, thanks for the warm words, and I agree that this is an amazing place, filled to the gunnels with amazing survivors!
My next PET scan is tomorrow, a sort of mid-course check (after 4, 3-week cycles of Xeloda pills at 2500 mg/day.) Today is the first day of my off-week (no more pills this cycle.) I'll post the outcome of the PET when I get the news Wednesday.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2013 Posts: 559 Likes: 1 | Hey Bart: I really liked that "don't attach to outcomes stuff". Maybe I've been doing that already and just didn't know what to call it.
Interesting reading. Maybe I'll tell a couple of B-52 stories sometimes.
take care
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0. 11/13 start rads, no chemo 12/13 taste gone, dry mouth, 02/14 hair slowly returning 05/14 taste the same, dry sinuses, irrigation helps. 01/15 food taste about 60% returned, dry sinuses are worse in winter. 12/20 no more sinus problems, taste pretty good
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