| | Joined: Apr 2013 Posts: 1 Member | OP  Member
Joined: Apr 2013 Posts: 1 | I had tongue cancer in 2006/2007. I was just diagnosed with Jaw Cancer on 3/13/13. I am have surgery on 4/25/13 @ Boston Medical Center to replace part of my jaw. Has anyone been thru this before??? Any info would be appreciated.
Diagnosed tongue cancer 10/31/06
Bi-lateral tongue removal 12/15/06 Lahey Burlington
Radiation to left side face and neck 1/07-4/07 Lahey Peabody
Biopsy 3/11/13
Diagnosed 3/13/13 Jaw cancer
Having surgery on 4/25/13 @ Boston Medical Center
| | | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Oct 2011 Posts: 225 | No I haven't CindyE, but someone will post soon who has. I just saw your post and wanted to wish you luck, and let you know I'm thinking of you. A second diagnosis must be shattering, but you will have lots of support from the friends you make on the forum. My very best wishes to you. Linda
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Cindy! Im so sorry you have to go thru this major surgery! Its not an easy one but you can get thru this.
I have had half of my lower jaw removed so I do have first hand knowledge of what this entails. For most patients they will spend one to 2 weeks in the hospital. You could have a trach. Make sure to ask for a possey muir valve trach so you can easily talk with it in. This is something I really disliked, to me it was pretty uncomfortable. I had graph sites which were pretty painful as well as the jaw area. Make sure you have pain meds and dont be afraid to take them. Being in pain will not help a patient at all. Recovery from this type of surgery can be very long. I had some complications (which most do NOT have), it took me a full year to bounce back. Ive seen others who were back to their normal selves in 2 months.
Wishing you all the very best with your upcoming surgery!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Apr 2013 Posts: 319 | I'm the new guy on the block, but I still wish you every success in this operation, and a quick and complete recovery.
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | | Joined: Apr 2013 Posts: 19 Member | | Member
Joined: Apr 2013 Posts: 19 | cindye, i'm so sorry to hear u have c again. I pray for a smooth treatment and a quick recovery.
debbiejeanne
laryngeal cancer in 8/09. 35 rad tremnts no surgery. Recurrence in 2/12. Complete laryngectomy. 10/12 pet scan, clean ned.
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
